Search results

The best part is that the cost of the steroid drug is cheap.

Out of interest @Mij , how long has it taken to get to this state? Hi @Amw66 Sorry for the delay in replying. I just saw your message today. I'll have to break it down a little. Early in the illness I started with 5-15 minute regular walking (5.5 years after onset) once a week after...

This obsession with exercise is disturbing. There is a PACE exercise program "Progressively Accelerating Cardiopulmonary Exertion" developed by Al Sears in the US, so there might misunderstandings are all over the net depending which country? Be Strong, in other words literally...

After the Chris Como show Don Lemon asked if these symptoms were mostly psychosomatic. Chris Como's response "NO".

It works fine for me.

Last night on CNN Chris Como interviewed Dr. William Li who says it appears that COVID is a 'blood vessel disease' causing severe damage to the vascular system, which would explain why the virus seems to be affecting all organs. Dr Li is an internal medicine physician and a research...

Post copied from the Possibility of ME or PVFS after COVID-19 thread Last night on CNN Chris Como interviewed Dr. William Li who says it appears that COVID is a 'blood vessel disease' causing severe damage to the vascular system, which would explain why the virus seems to be affecting all...

New letter: A case report of postural tachycardia syndrome after COVID-19. Researchers describe the first ever reported case of POTS after COVID-19. https://link.springer.com/article/10.1007/s10286-020-00727-9

Same in Canada. Experts here say the risks associated with DHEA outweigh the benefits

You just have to read about post polio syndrome, and how initial mild flu-like symptoms that went away only to return 35-40 years later. This happened to my neighbour years ago. She was walking to work one day and her legs just gave out. I've had similar incidences over the years...

This was totally an issue on my organic acids test results the next day after a jog.

:emoji_thumbsup:

Yep, only time will tell. I felt pretty much recovered from PVFS after 9 months, but quickly had a relapse once I started working and doing normal activities. I didn't experience PEM until 6-7 years later when I started exercising again.

The whole article translated into English: Eline (28) from Apeldoorn has already resigned herself to death: 'In this way I hope to give fellow sufferers a good life' Because Eline van der Wal (28) has a lot of underlying suffering in addition to neck instability, she can no longer be cured...

From the article: Feeling out of breath and racing heart in my experience during a viral infection is common for me, and "PEM" will come on immediately after exertion. The delayed PEM occurs when I've gone over my 'energy window'. I don't feel out of breath and my heart does not race...

I don't like to bring Mattie into this thread because he is no longer a member here and I want to respect his privacy. Is his experience being shared on these private and public social platforms? He has been very honest and open about his placebo effect on PR and his story needs be told.

From the article above. Again with this David Putrino, a physical therapist with a PhD in neuroscience, director of rehabilitation innovation in the Mount Sinai Health System advising exercise when he doesn't understand that long-haulers COVID patients could possibly develop ME. The...

From rvailee's link: "Please remember!!! We are available for questions or concerns; however we ask that should there be a sudden change in your symptoms or sudden beginning of a new symptom that you contact your primary care provider first. We want them to be able to help you assess whether...

@rvallee It's GET without the "label" then :emoji_rolling_eyes: and basically CBT without the label :emoji_rolling_eyes:

From the article/link above: "The trick, then, is to slowly recondition a patient’s nervous system through careful exercises, without triggering a debilitating crash. On Putrino’s team, a strength and conditioning coach devises workouts to slowly get patients accustomed to a higher heart rate...