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I feel it starts out poorly by mentioning ME/CFS and PEM. These articles continue to undermine ME, and bunch it up with post fatigue states. "Post‐exertional malaise is an extremely common feature and it is often associated with other immunological manifestations such as persistent sore...

Are they referring to PICS (post intensive care syndrome)? Problems can involve the patient's body, thoughts, feelings, or mind and may affect the family. PICS may show up as an easily noticed drawn-out muscle weakness, known as ICU-acquired weakness; as problems with thinking and judgment...

Oh, in that case no, it would be too heavy to lift.

I bought this one 4 years ago. It has super suction but I mostly use it on wood floors and 2 rugs. It weighs 6.1 kg but it is very very light to push? It rides itself. I hardly need any strength to push it and I'm not a strong person.

I'm not comparing polio to ME. I'm just saying that it has a viral onset.

My understanding is that there are 3 types of polio. This might turn out to be the same for ME? My neighbour had Polio as a child and relapsed 40 years later, her legs gave out on her, she recovered shortly after.

They don't refer to Polio as PVFS.

I was dx with PVFS/CFS in 1992 by an ME clinician. I don't think there was a code for encephalomyelitis in Canada at that time or even today? I recovered fully from PVFS and felt 90% improvement 5-6 yrs after onset. I started exercising and developed PEM. I think I can say that I am...

Many have experienced PVFS for decades and recovered, some not 100% back to baseline, PVFS does not equate ME despite the 'six month' waiting time. It seems everyone from sore legs to breathlessness is experiencing "PEM" since Covid.

Recovery from exercise and positive thinking?

Of course he didn't, he has recovered-post-infectious Covid, but for some reason he can't let go of the ME dx.

Of course he didn't, he has recovered-post-infectious Covid, but for some reason he can't let go of the ME dx.

Fatigue is not a defining symptom for ME/CFS. Maybe it's just me, but I want to distance myself from LC at this point.

I get immediate PEM when I over exert myself during allergy season and/ or a new viral infection onset. The overall experience is similar as the 12-15 hour delayed PEM, but it's not as distressful and doesn't produce cognitive impairment.

https://www.cell.com/cancer-cell/fulltext/S1535-6108(21)00051-9 https://www.mskcc.org/news/msk-researchers-learn-what-s-driving-brain-fog-people-covid-19

I assumed my disability application/letter went in front of a board of doctors to determine my eligibility? :rolleyes: My letter was written by an ME clinician (co-authored the draft for CCC) with 20+ years experience and specialized in disability applications. Rejected. I was told that...

The illusion of knowledge.

My application was rejected the first time around, the letter stated that I was 'capable of gainful employment'. I took it very personal and decided to call the judicator who determined that I was not disabled. She was a nurse, very pleasant on the phone, and admitted she knew...