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Chronic Fatigue Syndrome (ME/CFS) Isoprinosine Studies Few studies have assessed Isoprinosine’s effectiveness in ME/CFS. After a small single blind, placebo-controlled trial of 16 patients in 1999 Dr.Hyde’s published study (2003) indicated that 6/10 patients improved and that their natural...

@butter. Immunovir. Dr. Hyde and the Virologist who prescribed it for me did a small 6 wk study on CFS patients, the results showed that it increased NK cells and the patients felt less 'fatigued'. I literally couldn't walk for 3 months after taking it for only 3 weeks.

An astounding thing is that the dosage for trazodone to treat depression is a maximum of 600 mg/day. I take 25 mg for sleep, it puts me out within 20 minutes for 5 1/2 hours of solid sleep. I took 50mg max once and I was dizzy for a week What would happen if I took 150 mg, 400 mg or...

@Marky I agree with some of what you're saying, but I was given a medication for ME that made me a lot worse 18 years ago, so now I'm very cautious. I was warned by an ME doctor many years ago not to 'experiment' with ME, because when we have a relapse, it lowers our baseline...

When I asked my GP and pharmacist why I was given a very low dose antidepressant (trazodone) for sleep, they explained that they didn't know how it worked and said "it's a big pot of stew, we throw something into it and it works". Using drugs in lower doses to treat unrelated issues is...

CSF leak in a women's brain from a COVID test. Could this be caused from a pre existing condition? Encephalocele?

Psychology ties faith healing to a placebo effect. One simply expects to get better? This can lead to a self-fulfilling prophecy, and can have a strong correlation between belief and something happening.

Has anyone sent them a link to Mark VanNess's video regarding PEM where he shares a story about a marathoner with ME who was able to continue running, and after six months came back for more testing to learn that it made her worse?

One treatment of high dose experimental Regeneron IV cocktail saved 90% of Ebola patients.

They are still in the PVFS stages, so it's difficult to know how much they can do within their limits.

My doctors were shocked that I could actually go for a run for almost an hour in the earlier years after I recovered from PVFS. Looking back, I don't think I should have told them because it could have affected my disability income.

I've been saying this for many years on forums :D

Trump received experimental Regeneron antibody therapy.

He claimed that he took hydroxy months ago as a 'preventative' measure.

I've met several people irl that had a slow gradual onset without symptoms of an infection. All of them have allergies to many things, including mold. I never had sensitivities to anything until around 14 years into the illness.

Is there evidence of organ damage from ME? How many patients died from ME in the early stages of less than 6 months? I think Dr. Klimas made the statement that ME was like late-stage AIDS that lingers on for decades. Injuries yes. There are various processes leading to multi-systemic...

Is shortness of breath the same as out of breath? I've experienced feeling out of breath quickly from viral infections, particularly when I had HHV6 and EBV reactivation. One time I had to lie down on someone's lawn because I couldn't walk another step on my way to my doctor's clinic.

@Dolphin My apologies, yes it is an audio link (not video). https://www.bbc.co.uk/sounds/play/m000mzms

I feel like I have leprosy after reading how they view ME.

From your post #1902. The tweet has a link attached with a video.