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  1. Mij

    Amitriptyline Downregulates Chronic Inflammatory Response to Biomaterial in Mice, 2020, Scheuermann et al

    My ME doctor prescribed low dose amitriptyline for me in 1992, it made me feel muted shortly after taking it. It was not a good feeling so he told me to stop. Some pwME can't tolerate trazodone, but I do very well on low dose for sleep.
  2. Mij

    Breathlessness and air hunger in ME/CFS

    I forgot to mention that my breathlessness and increased heart rate occurs in the a.m hours and early afternoon. The contrast is like night and day. I can barely walk 2 blocks or climb a set of steps without feeling out of breath in the mornings, and yet in the evenings I can climb 11...
  3. Mij

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Seriously. How is this any different than advising higher sugar intake for diabetes?
  4. Mij

    Coronavirus - worldwide spread and control

    We have sent the Red Cross to 7 long term care facilities in my city. We had it 'under control' and moved to stage 3, but now we are back to stage 2 for another month.
  5. Mij

    The biology of coronavirus COVID-19 - including research and treatments

    In Canada we were reassured early in the pandemic that we were 'prepared' and learnt from the SARS outbreak in 2003. We were given a false sense of security and nothing was done.
  6. Mij

    BPS attempts at psychologizing Long Covid

    I think the new term is called "professional victim".
  7. Mij

    Parasym Plus

    Dr. Driscoll attends the Open Medicine Foundation research meeting at Stanford https://prettyill.com/featured_page/dr-_driscoll_invited_to_attend_the_open_medicine_foundation_research_meetin/
  8. Mij

    Strength Does Not Beat Viruses, Ed Yong, The Atlantic

    It's so insulting and upsetting to those who lost loved ones to this virus.
  9. Mij

    Coronavirus - worldwide spread and control

    Remember when we infected every child with Polio and achieved herd immunity? No? Me neither.
  10. Mij

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    We have to wait and see if this illness is a relapsing/remitting type after 'recovering' from the initial virus. It can take months and even a few years to get the full picture. I was fooled into thinking I recovered after 9 months. I returned to work and normal non stressful activities...
  11. Mij

    Aripiprazole - Abilify

    @Jaybee00 Did you have tests done to qualify for a trial of low dose Abilify? Or was it based on having certain symptoms?
  12. Mij

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Britt Hermes, writer, scientist and a former naturopathic doctor, discusses the pseudoscience of naturopathy:
  13. Mij

    Breathlessness and air hunger in ME/CFS

    I can't get my printer to scan atm, so I took pic with my phone but it's too blurry. The markers in the "Energy Production" panel that are below range are: Citrate 263 (ref range 400-2000) Isocitrate 37 (ref range 50-300) 2-Ketoglutarate 1 (ref range 5-80) Oxaloacetate 337 (ref range...
  14. Mij

    Breathlessness and air hunger in ME/CFS

    @MeSci no I'm trying to print out my results and post them here.
  15. Mij

    Breathlessness and air hunger in ME/CFS

    I feel out of breath, shaky and my heart races when I'm dealing with an immune response. I don't have difficulty breathing. Low ferritin, I feel out of breath and dizzy, but my heart doesn't race.
  16. Mij

    Breathlessness and air hunger in ME/CFS

    I've had periods when I feel out of breath from doing very little. So for me it is not PEM related unless I'm in a severe PEM state and have all the other symptoms to go with it. Over the years breathlessness was caused by several factors, below normal ferritin (5), low magnesium...
  17. Mij

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    The autonomic nervous system regulates the function of the body’s internal organs, such as heart rate, blood pressure, digestion, and body temperature. People with an autonomic disorder have trouble regulating one or more of these systems, which can result in fainting, lightheadedness...
  18. Mij

    Should there be separate care programs for Long-Covid patients? Please discuss

    A doctor on CNN this morning was discussing "VIP syndrome": a “VIP syndrome” has been recognized. It occurs when a very important person (VIP) is admitted to a health care facility and the status of that person affects decisions about medical care.
  19. Mij

    Should there be separate care programs for Long-Covid patients? Please discuss

    I'm listening to all the treatments that Donald Trump received, and how he has 'recovered' so far. He received an experimental antibody IV cocktail, antiviral and steroid medication all within 2 days. Wow. I wonder if I was given an antiviral early on during my onset whether I would...
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