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  1. Mij

    Coronavirus - worldwide spread and control

    @anciendaze Just a few hours ago on CNN they stated that The Trump administration signaled on Sunday that it had given up on controlling the spread of the coronavirus.
  2. Mij

    Exercise Guidelines for Postural Tachycardia Syndrome, De Wandele, Low, Rowe, Simmonds, 2020

    "In particular people with overlapping pathologies such as Hypermobility Spectrum Disorder, Ehlers Danlos Syndromes, fibromyalgia, chronic fatigue syndrome or overtraining scenarios need to be carefully managed to avoid exacerbation of symptoms and to enable steady progress". Enable steady...
  3. Mij

    'The dementia that can be cured' - Guardian article about autoimmune neurological diseases, 2020

    Years ago a Canadian doctor was saying that chlamydia pneumoniae could be implicated as a risk factor for some late-onset AD patients, and that he treated patients with abx with positive results. He also said they found this pathogen in autopsied brains of AD patients, and that it...
  4. Mij

    The peri-menopause in a woman’s life: a systemic inflammatory phase that enables later neurodegenerative disease, 2020, Raval et al

    I've had ME since the age of 29 and I can definitely tell the difference since starting meno 5 years ago (53). Reduced stamina, immune system going haywire, weakness in my hands/wrists, full stop weakness when I climb stairs, mood swings etc. I would describe the weakness and loss of...
  5. Mij

    New Name For "Brain Fog"?

    My sister describes her 'brain fog' as not remembering things and feeling fuzzy head. For me it feels the same as physical PEM except it's my brain. It's full stop. I can no longer process or absorb information and my brain feels sore. I feel nauseous and off-balance. My calf muscles...
  6. Mij

    New Name For "Brain Fog"?

    My sister has Hashimoto, and she described her 'brain fog' to me which isn't what I would describe as my experience.
  7. Mij

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    @Wonko What really strikes me as a possible over reaction is not being able to see family during the holidays as a 'crisis'. Perhaps I've had ME for too long or being social introvert is the reason, but I've never felt that my mental health was in an emergency crisis when I got sick. My...
  8. Mij

    New Name For "Brain Fog"?

    Agree. My cognitive impairment isn't permanent, but just like physical PEM, it can develop into less and less stamina over time. I don't think we will ever find a proper descriptive term to describe it though.
  9. Mij

    New Name For "Brain Fog"?

    What about mental exhaustion? Double ME/ME. Edit: I just googled mental exhaustion and 'burnout' kept showing up. Ugh.
  10. Mij

    The peri-menopause in a woman’s life: a systemic inflammatory phase that enables later neurodegenerative disease, 2020, Raval et al

    Neuroscientist Lisa Mosconi: ""For every man suffering from Alzheimer's, there are two women. So why is that?" Great TED talk here. Men have more testosterone, women have more estrogens. But what really matters here is that these hormones differ in their longevity. Men's testosterone doesn't...
  11. Mij

    New Name For "Brain Fog"?

    For myself, I've never liked or related to the term 'brain fog'. Dr. Alain Moreau of the OMF uses the term 'foggy brain' when describing ME and OI. I agree with @MEMarge that difficulty/impairment with processing and absorbing information gives a better description. My cognitive...
  12. Mij

    Coronavirus - worldwide spread and control

    I don't know which COVID thread to post this article on. Cancer surgeons in Ontario Canada are reporting a sharp rise in the number of people coming to hospital with advanced cancers. It's an unintended consequence of the sudden shutdown of non-urgent health-care services during the spring...
  13. Mij

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    The EB virus can develop into autoimmune diseases and cancer years from now. Some never fully recover and continue to experience less stamina. Look at HPV, and how some strains develop into cervical cancer 15-20 years down the road if not detected and treated in the early stages. Where...
  14. Mij

    Protocol for a randomised controlled feasibility trial of exercise rehabilitation for people with POTS: the PULSE study (2020) MacGregor et al

    Patients may develop POTS after a viral illness, serious infections, medical illness, pregnancy and trauma such as head injury. Not all post-infectious patients develop ME.
  15. Mij

    The biology of coronavirus COVID-19 - including research and treatments

    https://www.washingtonpost.com/world/the_americas/coronavirus-oxford-astrazeneca-vaccine-trial-death/2020/10/21/3f5bedac-13c0-11eb-ad6f-36c93e6e94fb_story.html
  16. Mij

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    I'm wondering what treatments are available for long-haulers if testing doesn't indicate a treatable problem? If it's post-infectious, then most doctors can't really do much at this point except wait it out because they won't know what's going on with their bodies either. They can...
  17. Mij

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    I wonder if their 'prescription' will be to go to the mall and "buy something nice" like I was told by an ER doctor. Btw, I have always bought myself something nice, but it didn't prevent me from becoming ill.
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