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Terrific to have the support of Emerge Australia for the open letter. This is the first Australian patient charity signing up. Thanks to @Simone for facilitating this.

:) (everyone except Paul Garner, who seems to have been a bit late coming to the full-on BPS party, and Simon Wessely, who could hardly have signed that 2012 letter saying how wonderful and brave he is, that's what he has acolytes for.) Edit - oh, probably a few others too - see the Anomalies...

Some background on Professor Paul Little: Professor of Primary Care Research within Medicine at the University of Southampton He gave his stamp of approval to a very bad case study of CFS/ME written to educate New Zealand doctors by Professor Bruce Arroll (who has been helping to promote the...

IoS letters, emails & online postings (2 December 2012) https://www.independent.co.uk/voices/letters/ios-letters-emails-online-postings-2-december-2012-8373777.html Chronic Fatigue Syndrome/ME is a debilitating condition affecting some 1 per cent of the UK population (“ME: bitterest row yet in...

Thank you very much to MECFS Canterbury in New Zealand for their support of the campaign. You might remember that last time I reported signatures per capita, Norway and New Zealand both had rates of support around 75 per million of population. As of a couple of days ago, that has increased to...

I'm assuming this is the service involved: https://bsw.icb.nhs.uk/long-covid/ Bath and North East Somerset, Swindon, Wiltshire BSW Long Covid Rehabilitation Assessment Clinic There are links to the Wiltshire Long Covid Rehabilitation Guide...

Yes, I think that's fair. I think that the BPS view of ME/CFS is incredibly insidious, creeping into the outlooks of even smart people who have seen ME/CFS close up and who genuinely want to help.

I don't think that analysis is quite right. Professor Tate has been staunch in dismissing the idea that GET helps for example. I think the mostly covers the multiple diseases that seem to initiate ME/CFS, while also allowing for things like vaccinations and physical trauma and, yes, possibly...

Please note that a Members Only thread has been merged into an existing Public thread. This thread is Public.

Possibly there's a better place to post this article, but it won't hurt here: Long Covid Advocacy blog on dualism and why Paul Garner goes on about it:

I was excited to see this paper. I do think that there will be answers in proteomics, although perhaps it will take some increased selection of the tissues/cell types samples to really zero in on the anomalies. I thought the Introduction was well written. This study looked at the unstratified...

Great comments @Robert 1973

Fantastic, thanks Peter and the Danish ME Association.

I've made a thread for this study, so we can have a good look at the evidence. Hypocortisolism in survivors of severe acute respiratory syndrome (SARS), 2005. Khee Shing-Leow et al

Hopefully, I can have a look at this a bit more tomorrow. I note though that a significant proportion of the patients with a normal 'HPA axis' reported fatigue and orthostatic issues:

Six of the 24 patients termed as having hypocortolism were given systemic glucocorticoids during the SARS infection and one was taking inhaled corticosteroids for asthma.

I've put this thread in Long Covid research, although it relates to the SARS-CoV-1 outbreak in Singapore, not the latest Corona virus. This paper has been cited as evidence of hypocortisolism in survivors of SARS-CoV infections. There were 238 people infected with SARS and 33 of them died...

Publication date: 2005 https://pmc.ncbi.nlm.nih.gov/articles/pmid/16060914/ Summary Objective Following the severe acute respiratory syndrome (SARS) outbreak, many survivors were observed to suffer from psychosomatic symptoms reminiscent of various endocrine disorders. Hence, we sought to...

From the video: 4.30 Putrino says that they have two more papers in the pipeline with more important differentiating factors - proteomics, hormone differences, gender differences. They will be talking about them soon. This team is still talking about low morning cortisol as being a...

The Japan ME Association is supporting the open letter - big thanks to them. President Mieko Shinohara-san notes that they have been fighting against GET for years, and hope for immediate action by Cochrane.