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I want to highlight this video that was originally posted on the NZ news thread by @Ravn. Dr Cathy Stephenson features. I didn't get around to listening to it at the time. It's a Goodfellow podcast, which is weird given the atrocious recent Goodfellow 'CFS/ME' MedCase document by Bruce Arroll...

I guess the outcome assessor can be the patient.

From the CSPI article: I applaud the CSPI action but it looks like they are attacking EpicGenetics on a technicality. If I had been diagnosed with fibromyalgia, I might look at those claimed accuracies from the company study and think - so what if it isn't 99% accurate, maybe it can still be...

:) I found that paper your recommend @CRG on Adult Neuroplasticity an interesting read. Clearly a lot of things remain to be worked out. Here's some bits I found interesting before I ran out of steam: That means that any study of dendritic morphology in ME/CFS or depression or any chronic...

The introduction sets up the findings (note, no references given for the idea that food and beverage, exercise etc choices etc affect PASC risk): The participants had to be treated for Covid-19 by the health system - there's a bias there to people who were either more significantly affected...

Just a thought, if anyone has a line to Peter Barry, I wonder if he could have a chat with Gillian Leng, who he probably knows, about the ongoing hosting of the Larun et al exercise therapy review? That ongoing hosting negates a lot of the good that the NICE Guidelines do, especially in...

The presence of Gillian Leng, who was in charge of NICE when the ME/CFS Guideline was produced, on the governing board of Cochrane, is such an interesting twist to it all. I'm not sure how much certainty we have that she was the one receiving encouragement to overturn the findings of the NICE...

That's Toby Morrison, based in Australia. I and others have written about him, if not here then previously, on PR. He charges people huge sums for his advice. Seems he had chronic fatigue as a teenager, and recovered as most people do, so of course believes that he knows how to fix people.

1045 signatures

There are some interesting bits/speculation about immunology, I'm not sure that I can even remember them now and more related to Covid-19 (e.g. the accuracy of the rapid tests) than Long Covid. Good to get to know Anna a bit more though.

Stephanie L. Grach, MD, MS Jaime Seltzer, MS Tony Y. Chon, MD Ravindra Ganesh, MD, MBBS On a quick skim, it looks pretty good. As you would expect with Jaime as one of the authors, it gets the main things right such as PEM; 'don't do GET' and making the link with Long Covid. As with many...

I need to write something to support the development of an ME/CFS patient registry in my country. I'm interested to know what ME/CFS patient registries exist in the world - I think there's; Solve M.E.'s ones - Australia and the US OMF - US (and beyond?) Germany - I think there's one? And I...

It's a great petition, the explanation is very good. I hope people will support it.

We have had a drop off in signatures over recent days: We are hearing from some organisations that they have been told that Cochrane is going to publish something shortly, and that therefore there is no need to support the petition or the open letter. Of course, the removal of the 2019...

That reference is: Characterizing long COVID in an international cohort: 7 months of symptoms and their impact Davis et al Note that that was a 2020 paper. Forum thread here:Characterizing Long COVID in an International Cohort: 7 Months of Symptoms and Their Impact, 2020, Hannah Davis et al

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This is a public thread. While we have a requirement of confidentiality for Members Only threads, and while Members Only threads are not accessed by search engines, it is wise to not post anything that you would be concerned about being repeated in those either. Conversation messages are...

Hubris, I suspect the reason the neurologists dismiss the finding is because they don't know where to begin to understand it. I'm sorry that I don't have the capacity to try. Maybe you can find a researcher expert on the topic by searching for people who have published about it? They might be...

A very warm welcome to the forum Audrey. Thank you very much for being a member here and for incorporating people with ME/CFS into your research team.

PROFESSOR PAUL LITTLE AWARDED 2020 MAURICE WOOD AWARD FOR LIFETIME CONTRIBUTION TO PRIMARY CARE RESEARCH, 2021 For all that, I can't see that he has actually done much work on ME/CFS or even CFS/ME. I'm not sure why anyone would think that Professor Paul Little is an authority on ME/CFS...