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I think this idea of a substantial reduction in risk with more recent variants and immunity acquired after infections and vaccination may have quite a lot of wishful thinking to it. Even with a substantial reduction in risk, the issue of Long Covid after repeat infections is a real worry. With...

We now have a thread for the discussion of the COVARS report: France: COVARS Report on Long Covid

That sounds amazing. What a breakthrough. Same. It sounds as though it could be very useful for advocacy.

Personally, my tregs numbers have actually been measured as bit higher than the normal and I don't think we've seen any evidence of differences in numbers in either direction in ME/CFS on average. So, if it's an issue with tregs, it's a problem of function not numbers. I'm wondering if the...

The abstract suggests that the paper is written by neurologists Biba Stanton 1 1. Department of Neurology, King's College Hospital NHS Foundation Trust, London, UK https://www.kcl.ac.uk/people/biba-stanton That description of Stanton's background indicates that she is hard core FND, but also...

I'm disappointed. With the title of 'Cognitive behavioural therapy for neurologists', I thought it might be the neurologists who were the recipients of therapy aiming to change their behaviour. Certainly, the neurologist I saw would have benefitted from such a therapy.

Even I, without any sort of BPS filter on things, think that statement "most never fully recover from the condition" is unevidenced. The link is to the paper that is the subject of this thread - they followed veterans for two years only. Two years of no recovery is not 'never fully recover"...

Would an example of naming things wrongly be when people are assumed to not have had Covid-19 when they can't provide evidence of having had a positive test? Or perhaps setting the bar for the definition of Long Covid so low that nearly everyone qualifies as having it? Or perhaps labelling...

Do we know who the consumer reps on the Cochrane Editorial Board are?

Thank you to the Italian organisation Associazione CFS Organizzazione di Volontariato for adding their support to the campaign, and also to Giada for reaching out to them. Terrific to see a surge in support from France over the past day.

Some news about changes in Cochrane's management structures has been moved from this thread to News from Cochrane

For sure DMissa, but when you have 9 cases and 7 controls and substantial variation between and within those samples, statistical methods can't do magic.

More good work by the MEA trying to clean up UK information about ME/CFS: UK Royal College of Psychiatrists

Great stuff from the MEA.

Wow, a great (well, terrible, but useful) bit of information. Thanks Peter. I'd be surprised if the number of citations is a major reason for Cochrane to retain it. Rather I think it's the fervent belief of people with influence inside Cochrane that the Exercise Review is correct that is a...

(B) Fatigue was defined as a total score of ≥22 on the Fatigue Assessment Scale (FAS) questionnaire. Single gene expression levels in fatigued (n=35) and non-fatigued (n=34) long COVID patients, data are presented as mean values and are expressed relatively to the expression level of healthy...

Effectiveness of psychosomatic therapy for patients with persistent somatic symptoms: Results from the CORPUS... 2023 Wortman et al This recent one is flawed in many ways. Ethical issues include issues with free prior informed consent, considerable bias in the data that are reported and...

Next talk: Chronic Infections—November 30, 2023, 11:00AM ET

I wonder at what stage this study is at. Long covid and ME/CFS patient organisations need to get the message out that this study should be boycotted. When the investigators approach the whole issue with such certainty (e.g. the lead author comes from the Department of Psychosomatic Medicine...