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The ambiguity of the messages continues. e.g. at 23/24 minutes on one slide: "People tend to naturally increase their physical activity when they feel better" "Exercise can be harmful to some patients with dysautonomia and should be prescribed by a health care provider that understands the...

Perhaps it is churlish of me, but noting that exercise is contraindicated in people with post-viral symptoms seems to me to be only part of the story. Where's the evidence that exercise helps fix anyone with post-viral symptoms? Near the start: Amy Mooney: "I have focussed my treatment...

In brief - this content is noncommittal but, to me, it doesn't look terrible. It doesn't sound as though the treatment of CFS has changed.

In the case of the Dubbo study, I recall that there were issues with the assessment of severity. From memory, they only assessed people a bit after the infection, so people with the beginning of persistent symptoms might have been assessed as more severe. I'd have to go back and look at the...

Nice commentary about the importance of objective measures in the introduction: Rationale and study hypothesis: Method: ICC criteria Mild - approx 50% reduction in activity Medium - mostly housebound Severe - mostly bed bound Very severe - entirely bed-bound (excluded from the study as...

PETITION UPDATE December update DEC 18, 2023 The day after our last petition update, the S4ME committee sent a letter to the Head of Governance, Cochrane Central Executive Team. You can find the letter here. In it, we queried Cochrane's earlier letter where they said first, that they were...

We've created a thread for Elise van de Putte in the Doctors section and copied a post there. The Netherlands: Paediatrician Elise van de Putte

And this is my (well, one of my) concerns with the Cochrane Exercise Review. The BPS proponents who seem to have some control over the outcome may be willing to let go of a slice of MUS, that is 'people who manage to get a diagnosis of ME/CFS', while continuing to assert that their therapies...

There is a substantial decrease of risk of MS in the HIV positive women, but the numbers of people with HIV going on to get MS are very small, even in men (and men constituted the majority of the samples). They took country of birth into account, but didn't take length of time living there...

Although the deadline has passed, UK advocacy organisations might like to check out the advertisement for health consumer studies in Coventry (see the link) . Healthwatch England - Resource for Campaign Assistance Perhaps there are similar opportunities elsewhere with HealthWatch.

I'm posting this on behalf of a member. It's good to see something positive, an initiative that values the perspective of the health services consumer. The deadline for this grant process has passed, but perhaps other regions may have different timelines? And perhaps UK ME/CFS groups might be...

We've had a burst of signatures from Switzerland - thanks so much to whoever is responsible for promoting the petition there for that.

Posting on behalf of @Louie41, this video covers a lot of the same ground as the Larry Weed presentation. (And that ground is important.) It's a nice listen although slow moving to start with. If you want to get to the guts of it, start at the 10 minute mark where the presenter, Dr Donald...

There's this paper (not open access): miR-448 regulates potassium voltage-gated channel subfamily A member 4 (KCNA4) in ischemia and heart failure Results: The expression of KCNA4 is diminished in ischemia and human heart failure tissues with ventricular tachycardia. Previously, we have shown...

I'm thankful, I really am. I think this project is good, and it's amazing that it's been awarded so much money. But who was consulted when they came up with the project name, LOCOME? Surely it would only take a little bit of thinking to realise that it is not a great name? Edit - Maybe it's...

From the video (thanks for linking it Pibee) If I'm not mistaken, the plasmablasts actually head back into the bone marrow where they turn into plasma cells, including Long Lived Plasma Cells? Maybe we need something targeting CD138 cells? It does sound very interesting, an amazing technique.

There's detailed information in this paper, but its conviction that physical rehabilitation is the way to go limits its use in advocacy.

Fantastic, thank you

I'm wanting a good reference about the risk of Long Covid in subsequent infections. I couldn't find one immediately although I think we have seen a couple of papers on that topic. If I find them, I'll post them here. But if you put your finger on them immediately, please do let me know. Of...

A new paper out on PASC in Liberia: Prevalence and determinants of post-acute sequelae of COVID-19 in Liberia, 2023, Gwaikolo et al.