Week beginning 12th February 2024
News, advocacy and media
The Netherlands
On February 15, the Dutch Parliament voted on several amendments including one for €4,4 million of additional funding for ME/CFS research and one on €27 million for the establishment of Long Covid clinics. Both...
Week beginning 5th February 2024
News, advocacy and media
World ME Alliance has announced a theme/hashtag for World ME Day 12th May 2024: "Become a #GlobalVoiceForME." The website has tools to help folks post on social media and make custom posters. There's also an ME fact sheet, videos, and...
Week beginning 29th January 2024
News, advocacy and media
The Netherlands
A Dutch petition asks supporters to vote for post-COVID specialist clinics in the Netherlands. It closes on 13/02/2024 and will be handed to the House of Representatives.
Petition | Thread
Science for ME petition...
This thread has a Science for ME 'News in Brief' post for each week in February 2024 by a team including @Trish, @Kalliope, @ahimsa and @SNT Gatchaman. Scroll down to see this week's news.
Week beginning 22nd January 2024
Part 2 of 2
Research
ME/CFS research
Preprint
IgG Antibody Responses to Epstein-Barr Virus in ME/CFS: Their Effective Potential for Disease Diagnosis and Pathological Antigenic Mimicry - Fonseca et al.
Computer analysis of "a large public dataset on the IgG...
Week beginning 22nd January 2024
Part 1 of 2
News, advocacy and media
USA Today US is turning its back on long COVID. We'll pay the price if we don't act.
An opinion piece by U.S. Senator Bernie Sanders, chairman of the Senate Committee on Health, Education, Labor and Pensions. He talks about...
Week beginning 15th January 2024
News, advocacy and media
USA Addressing Long COVID: Advancing Research and Improving Patient Care
The U.S. Senate committee on HELP (Health, Labor, Education & Pensions) live-streamed this hearing on January 18. The website has a recording of the meeting (about...
Week beginning 8th January 2024
News, advocacy and media
New York Amsterdam News The continuing fight for Long COVID and Myalgic Encephalomyelitis patients
Interview with Billy Hanlon, director of advocacy and outreach for the Minnesota ME/CFS Alliance. He talks about Long Covid and ME/CFS...
Week beginning 1st January 2024
News, advocacy and media
The Philadelphia Inquirer Anthony Fauci and unlocking the biggest mystery in medicine
Michael J. Stephen MD writes that Covid-19 confirms the suspicion that viruses can trigger a "cascade of decline and misery". He has spoken to Anthony...
This thread has a Science for ME 'News in Brief' post for each week in January 2024 by a team including @Trish, @Kalliope, @ahimsa and @SNT Gatchaman. Scroll down to see this week's news.
Week beginning 25th December 2023
News, advocacy and media
UK Yahoo News Council responds to billboard criticism from long Covid campaigners
"The Medical Research Council has reacted to criticism by long Covid campaigners who put up a large billboard near its Swindon office." Responding to the...
Week beginning 18th December 2023
Part 2 of 2
Research news
UK Invest in ME Research LunaNova Fellowship
Applications are invited for a Postdoctoral Research Fellowship to join Prof Simon Carding at Quadram Institute Bioscience (QIB), based in Norwich, UK.
"The successful candidate will...
Week beginning 18th December 2023
Part 1 of 2
:emoji_evergreen_tree: Seasonal good wishes to all our readers :emoji_evergreen_tree:
News, advocacy and media
Patient Led Research Collaborative Open letter sent to President Biden
An open letter signed by clinicians, researchers, research...
Week beginning 11th December 2023
News, advocacy and media
#MEAction has announced plans for Millions Missing 2024, "a national campaign to educate hospital systems and medical schools about ME/CFS." The goal is to hold in person events at medical schools and hospitals during the week of May 3...
Week beginning 4th December 2023
News, advocacy and media
Trial by Error by David Tuller Dutch Survey respondents Rate GET/CBT as "the Worst" Approach, Per New Report
Graded exercise therapy was rated as the worst intervention in a Dutch survey with more than 1500 ME/CFS participants. The...
Week beginning 27th November 2023
News, advocacy and media
Action for ME Podcast: Learn about M.E. and Paediatrics
"Hear from consultant Dr Binita Kane how her experience of her and her family’s health has made her reconsider her understanding of post-viral illnesses like M.E. and Long COVID...
This thread has a Science for ME 'News in Brief' post for each week in December 2023 by a team including @Trish, @Kalliope, @ahimsa and @SNT Gatchaman. Scroll down to see this week's news.
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