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Week beginning 28th October 2024 News, articles and advocacy UK #ThereForME have sent a letter, co-signed by 28 organisations and smaller initiatives, to Layla Moran MP (chair of the UK government Health and Social Care Select Committee). "The letter points to inadequacies, present and...

Week beginning 21st October 2024 Part 2 of 2 Research ME/CFS research JCI Insight Immune exhaustion in ME/CFS and long COVID — Natalie Eaton-Fitch et al. "both the upregulation (KIR2DL5A/B) and downregulation (HLADQA1 and HLADQB1) of genes associated with antigen presentation suggest a...

Week beginning 21st October 2024 Part 1 of 2 News, articles and advocacy The Conversation Ignored, blamed, and sometimes left to die - a leading expert in ME explains the origins of a modern medical scandal A beautifully written insight article by Chris Ponting on how ME patients have become...

Week beginning 14th October 2024 News, articles and advocacy The Guardian Maeve Boothby O´Neill died because of a discredited view of ME. How was this allowed to happen? An excellent article by George Monbiot on some of the background for the appalling treatment of ME patients. Monbiot...

Week beginning 7th October 2024 News, articles and advocacy USA Open Access Government Creating a Research Home for ME/CFS, Long Covid, and others" Op-ed by Emily Taylor, President and CEO of Solve M.E on the importance of more research into infection-associated chronic conditions and...

Week beginning 30th September 2024 Part 2 of 2 Research ME/CFS research Medical Hypotheses Chronic fatigue syndrome and multiple sclerosis have reduced craniospinal compliance and dilated pressurized bridging cortical veins - G & A Bateman The authors speculate that findings about cortical...

Week beginning 30th September 2024 Part 1 of 2 News, articles and advocacy Cochrane Review Exercise therapy for CFS It is 5 years since Cochrane published the 2019 version of the Larun et al review on 2nd October 2019, and set up a process intended to produce an updated review in two years...

For next week's news go to this thread: News in Brief - October 2024

This thread has a Science for ME 'News in Brief' post for each week in October 2024 by a team including @Trish, @Kalliope, @ahimsa and @SNT Gatchaman. Scroll down to see this week's news.

Week beginning 16th September 2024 News, articles and advocacy USA A group of leading ME researchers have sent an open letter to the NIH Director, Monica Bertagnolli, urging her to include ME/CFS in the RECOVER Initiative on Long Covid. The letter is signed by Ian Lipkin, Anthony Komaroff...

Week beginning 9th September 2024 News USA ME/CFS patients needed for a PET/MRI study Principal Investigator: Micheal VanElzakker, PhD, Massachusetts General Hospital "Survey, Personal health tracking, Blood draw, Injection or IV, MRI scan, PET scan may be required" Details | Thread USA...

Week beginning 1st September 2024 News, advocacy and articles BMJ Evidence-Based Nursing - Building an NHS that truly supports people living with long COVID and ME: government action needed now, Twycross A, Hughes B, Hargrove K. Excellent editorial presenting a policy brief which is part of...

For next week's news go to this thread: News in Brief - September 2024

This thread has a Science for ME 'News in Brief' post for each week in September 2024 by a team including @Trish, @Kalliope, @ahimsa and @SNT Gatchaman. Scroll down to see this week's news.

Week beginning 19th August 2024 News, advocacy and articles UK Action for ME are promoting a template for a 'care and support plan' designed by physiotherapist Peter Gladwell and some of his patients. Forum discussion has raised serious concerns about the purpose and content of this document...

Week beginning 12th August 2024 Part 2 of 2 Research ME/CFS research Bioarchiv Fast Targeted Metabolomics for Analyzing Metabolic Diversity of Bacterial Indole Derivatives in ME/CFS Gut Microbiome - Tian et al. "This study investigates whether the metabolic diversity—the concentration...

Week beginning 12th August 2024 Part 1 of 2 News, advocacy and articles Aotearoa New Zealand ANZMES Guideline Severe ME/CFS and long Covid in secondary care: guide to management during patient hospital stays Press Release | Thread Sweden The National Board of Health and Welfare has published...

Week beginning 5th August 2024 UK Inquest As we reported in the last two weeks' news, the inquest has been held into the death of Maeve Boothby O'Neill and covered widely in UK media. Further articles this week before the coroner reported her findings on Friday included: Trial by Error by...

Week beginning 29th July 2024 News UK Inquest Warning: upsetting content The second week of a two week inquest into the death of Maeve Boothby O'Neill who had very severe ME/CFS was held this week. There was more evidence from clinicians which exposed the lack of specialist hospital provision...

For next week's news go to this thread: News in Brief - August 2024