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Week beginning 10th April 2023 News, articles and advocacy USA The National Academies of Sciences, Engineering, and Medicine is calling for public comment on the U.S. Government working definition for Long COVID and related technical terms. The Online Public Comment Portal will be open until...

Week beginning 3rd April 2023 Part 2 Research news and commentary UK DecodeME Recruitment is ongoing for this questionnaire and genetic study. Participation is online and by post and all people over 16 in the UK with an ME/CFS diagnosis are encouraged to participate. The researchers report...

Week beginning 3rd April 2023 Part 1 of 2 News, articles and advocacy CDC - A recording of the ME/CFS Stakeholder Engagement and Communication (SEC) Call from Dec. 6, 2022, is now available. It includes a presentation by Dr. David Systrom titled, “Neurovascular Dysregulation During Exercise...

For next week's news, go to this thread: News in Brief - April 2023

This thread has a Science for ME 'News in Brief' post for each week in April 2023 by a team including @Trish, @Kalliope and @ahimsa. Scroll down to see this week's news.

Week beginning 27th March 2023 News, articles and advocacy Nina E. Steinkopf has written an article with more details about an ME seminar in Oslo with a biopsychosocial approach for specially invited. Steinkopf has asked one of the attendees, the chief physician for the Norwegian Labour and...

Week beginning 20th March 2023 Part 2 Research news New Zealand (Aotearoa) Post-Viral Research Aotearoa Founded in 2022 with lead researcher immunologist Dr Anna Brooks. Crowd-Funded Research into Long Covid, ME/CFS & Other Post-Viral Illnesses Hosted at the University of Auckland. Volunteers...

Week beginning 20th March 2023 Part 1 of 2 News, articles and advocacy Austria CFS Hilfe announced on Facebook that the ME/CFS petition was handed over to the Health Committee with the support of all fractions. CFS Hilfe hopes for constructive treatment in the Health Committee and concrete...

Week beginning 13th March 2023 News, articles and advocacy Sweden On 8 March, members of the Swedish Parliament held a seminar on ME/CFS and the need for more research and specialist centers. Among the speakers were Jonas Bergquist and Brian Hughes. Article here Thread here Europe The...

Week beginning 6th March 2023 News, articles and advocacy USA - Solve ME posted an update on the CDC's attempt to create a set of clinical guidelines for ME/CFS. "Unfortunately, the CDC has determined that there is not enough evidence to formulate the recommended guidelines, and they will...

Week beginning 27th February 2023 Part 2 of 2 Research Biomedical ME/CFS research Frontiers in Neuroscience Brainstem volume changes in ME/CFS and long COVID patients - Thapaliya, Barnden et al This small MRI study found some named regions of the brainstem were significantly larger in both...

Week beginning 27th February 2023 Post 1 of 2 News, articles and advocacy UK Parliament The AGM of the ME/CFS All Party Parliamentary Group will be on 21st March. "... the AGM will include a one year-on review of the implementation of the new NICE guideline including a presentation from...

For next week's news go to this thread: News in Brief - March 2023

This thread has a Science for ME 'News in Brief' post for each week in March 2023 by a team including @Trish, @Kalliope and @ahimsa. Scroll down to see this week's news.

Week beginning 20th February 2023 News, articles and advocacy UK ReMEmber the ME charity run by Bill and Janice Kent has closed down on their retirement. They provided support, advocacy and education about ME for 25 years. 'Their award-winning work is recognized by the wide circle of...

Week beginning 13th February 2023 News, articles and advocacy World Health Organisation A clinical case definition for post COVID-19 condition in children and adolescents by expert consensus This document is the result of a systematic review and clinicians meeting. The most common symptoms are...

Week beginning 6th February 2023 News, articles and advocacy World ME Day May 12th 2023 World ME Alliance has announced the theme for World ME Day 2023 which will be post-exertional malaise with tagline: "ME: the disease where pushing harder can make you sicker". Announcement l Thread...

Week beginning 30th January 2023 News, articles and advocacy UK - Scotland There was a debate in the Scottish parliament on the "Scottish Government Commissioned Review of ME Services and Future Action". The review from July 2022 raises the need for GP education and recommends setting up pilot...

For next week's news go to this thread: News in Brief - February 2023

This thread has a Science for ME 'News in Brief' post for each week in February 2023 by a team including @Trish, @Kalliope and @ahimsa. Scroll down to see this week's news.