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  1. S4ME News

    News in Brief - July 2023

    This thread has a Science for ME 'News in Brief' post for each week in July 2023 by a team including @Trish, @Kalliope and @ahimsa. Scroll down to see this week's news.
  2. S4ME News

    News in Brief - June 2023

    Week beginning 26th June 2023 Part 2 of 2 Research Biomedical ME/CFS research Frontiers in Neuroscience Cognitive impairment in long COVID and short duration ME patients is mediated by orthostatic hemodynamic changes - Vernon et al 256 participants. "Compared to healthy controls, the disease...
  3. S4ME News

    News in Brief - June 2023

    Week beginning 26th June 2023 Part 1 of 2 News, articles and advocacy Sweden A call from a number of specialists and the Swedish patient organisations for Covid, ME, and difficult-to-diagnose-infectious-diseases to invest in and develop specialist care for post-infectious diseases, rather...
  4. S4ME News

    News in Brief - June 2023

    Week beginning 19th June 2023 News, advocacy and resources USA - Bateman Horne Center "Push/Crash Cycle and Triggers in ME/CFS & Long Covid" This handout, part of their medical education series, talks about different triggers for PEM/PESE (post-exertional malaise/post-exertional symptom...
  5. S4ME News

    News in Brief - June 2023

    Week beginning 12th June 2023 News, advocacy and articles Australia Queensland scientists push for new national treatment guidelines for chronic fatigue syndrome Professor Sonya Marshall-Gradisnik joined politicians, ME/CFS patient representatives and other researchers from across the country...
  6. S4ME News

    News in Brief - June 2023

    Week beginning 5th June 2023 News, advocacy and articles UK DecodeME A reminder to spread the word about this important genetic study which needs many more participants in the UK with a diagnosis of ME/CFS. Spread the word | Take part | Thread USA The CDC posted information from the ME/CFS...
  7. S4ME News

    News in Brief - June 2023

    Week beginning 29th May 2023 News, advocacy and articles UK Action for ME FOI Report reveals shocking lack of specialist care The report is titled: "Patchy, Misunderstood and Overlooked - Implementation of the NICE Guideline [NG206] on [ME/CFS] in England - Freedom of Information Findings...
  8. S4ME News

    News in Brief - May 2023

    Go to this thread for the next weekly news: News in Brief - June 2023
  9. S4ME News

    News in Brief - June 2023

    This thread has a Science for ME 'News in Brief' post for each week in June 2023 by a team including @Trish, @Kalliope and @ahimsa. Scroll down to see this week's news.
  10. S4ME News

    News in Brief - May 2023

    Week beginning 22nd May 2023 Part 2 of 2 Research ME/CFS research IBRO Neuroscience Reports Orthostatic chronotropic incompetence in patients with ME/CFS - van Campen et al. "During tilt testing we found that in 134/362 (37%) patients with ME/CFS without POTS or hypotension, the heart rate...
  11. S4ME News

    News in Brief - May 2023

    Week beginning 22nd May 2023 Part 1 of 2 News, advocacy and articles UK ME Association survey: Count ME In "We are asking people to complete a short survey about their health experiences and the support they have received from the NHS and social care services." Survey | Thread UK ME...
  12. S4ME News

    News in Brief - May 2023

    Week beginning 15th May 2023 News, advocacy and articles Germany The German Institute for Quality and Efficiency in Health Care (IQWiG) has published its report on ME/CFS. The final version has increased the prevalence estimates and toned down statements supportive of graded exercise and CBT...
  13. S4ME News

    News in Brief - May 2023

    Week beginning 8th May 2023 Part 2 of 2 Research ME/CFS research Journal of Translational Medicine Proteomics and cytokine analyses distinguish ME/CFS cases from controls - Giloteaux, Hanson et al. The researchers analysed the cytokine content of "extracellular vesicles (EVs) from frozen...
  14. S4ME News

    News in Brief - May 2023

    Week beginning 8th May 2023 Part 1 of 2 News, articles and advocacy International ME Awareness Day 12th May In Washington DC Long COVID & ME/CFS communities demonstrated on the National Mall with the installation of 300 cots to represent the millions of people missing from their lives. On the...
  15. S4ME News

    News in Brief - May 2023

    Week beginning 1st May 2023 News and articles PEM A new and excellent information video from BrokenBattery which in just two minutes explains Post Exertional Malaise (PEM). Video l Thread Dr David Putrino who researches ME/CFS and Long Covid has written a moving Twitter thread about his...
  16. S4ME News

    News in Brief - April 2023

    For next week's news go to this thread: News in Brief - May 2023
  17. S4ME News

    News in Brief - May 2023

    This thread has a Science for ME 'News in Brief' post for each week in May 2023 by a team including @Trish, @Kalliope and @ahimsa. Scroll down to see this week's news.
  18. S4ME News

    News in Brief - April 2023

    Week beginning 24th April 2023 Part 2 of 2 Research news USA NIH has announced the members of the ME/CFS Research Roadmap Working Group. This group will will meet regularly in 2023 to identify research priorities and develop a roadmap for ME/CFS research. Details | Thread The Netherlands...
  19. S4ME News

    News in Brief - April 2023

    Week beginning 24th April 2023 Part 1 of 2 News and articles World ME Alliance has released a new 2-page fact sheet on ME with a particular focus on post-exertional malaise (PEM). Available in four languages. Article | Thread The US ME/CFS Clinician Coalition has posted a message on their...
  20. S4ME News

    News in Brief - April 2023

    Week beginning 17th April 2023 News and articles Austria A motion for a resolution for better care for ME/CFS patients was tabled in the Health Committee of the Austrian Parliament. Article | Thread Germany The final report by IQWiG on ME/CFS has been sent to the contracting agency and is...
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