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Week beginning 11th September 2023 Part 1 of 2 News and advocacy Petition "Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review" The Science for ME petition in support of the open letter to Cochrane now has over 6000 signatures. Please sign and share. Petition | Petition thread...

Week beginning 4th September 2023 Part 2 of 2 Research news UK DecodeME Many more UK people with ME/CFS are needed for this large genetic study. All severity levels can take part as participation is from home. Questionnaires can be filled in on paper or online, and saliva samples for DNA...

Week beginning 4th September 2023 Part 1 of 2 News and advocacy Petition "Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review" Last week the Science for ME committee sent an open letter to the Editor-in-chief and other senior representatives of Cochrane requesting urgent...

For next month's news go to this thread: News in Brief - September 2023

This thread has a Science for ME 'News in Brief' post for each week in September 2023 by a team including @Trish, @Kalliope and @ahimsa. Scroll down to see this week's news.

Week beginning 28th August 2023 Part 2 of 2 Research ME/CFS research Wiley Advanced Science Developing a Blood Cell-Based Diagnostic Test for [ME/CFS] Using Peripheral Blood Mononuclear Cells - Jiabao Xu, Morton et al. ".. a single-cell Raman platform and artificial intelligence are utilized...

Week beginning 28th August 2023 Part 1 of 2 News and advocacy Cochrane Exercise therapy for ME/CFS review The S4ME committee has sent on behalf of members an Open Letter to Karla Soares-Weiser, editor-in-chief of Cochrane, requesting: "1. The immediate withdrawal or retraction of the 2019...

Week beginning 21st August 2023 News and advocacy UK Government Open consultation Improving the experiences of people with ME/CFS: interim delivery plan A reminder that the consultation ends on 4th October. Website | Plan | Consultation | Thread ME Research UK has published a response to the...

Week beginning 14th August 2023 News and advocacy Aotearoa New Zealand Parliament Select Committee Response to Petition The Health Committee has considered the petition of Associated Myalgic Encephalomyelitis Society Incorporated—Reclassification of ME/CFS to disability—and recommends that the...

Week beginning 7th August 2023 News and advocacy UK Government Open consultation Improving the experiences of people with ME/CFS: interim delivery plan "We're seeking your views on an interim delivery plan to improve the experiences and outcomes of people with ME/CFS. This consultation closes...

Week beginning 31st July 2023 Part 2 of 2 Research ME/CFS research Journal of Medical Virology A multicenter virome analysis of blood, feces, and saliva in ME/CFS - Briese et al. "We found no consistent group‐specific differences other than a lower prevalence of anelloviruses in cases...

Week beginning 31st July 2023 Part 1 of 2 News and articles USA NIH selects Dr. Jeanne Marrazzo as director of the National Institute of Allergy and Infectious Diseases This is the department that was run by Dr. Fauci, and deals with infections including COVID and Long COVID. NIH...

For next week's news go to: News in Brief - August 2023

This thread has a Science for ME 'News in Brief' post for each week in August 2023 by a team including @Trish, @Kalliope and @ahimsa. Scroll down to see this week's news.

Week beginning 24th July 2023 News, articles and advocacy The Atlantic Fatigue Can Shatter a Person A brilliant article by the Pulitzer price winning journalist Ed Yong on fatigue in diseases such as long COVID and ME/CFS. It discusses PEM and pacing, and medicine's and society's scepticism...

Week beginning 17th July 2023 News, articles and advocacy MEActionUK's excellent rapid response to the article by White et al, reported in last week's news, has been published by the journal JNNP. "The ME community support NICE and reject the misguided attack in ‘Anomalies in the review...

Week beginning 10th July 2023 Part 2 of 2 UK 2021 NICE ME/CFS Guideline - Commentary BMJ Journal of Neurology, Neurosurgery and Psychiatry Anomalies in the review process and interpretation of the evidence in the NICE guideline for chronic fatigue syndrome and myalgic encephalomyelitis -...

Week beginning 10th July 2023 Part 1 of 2 News, articles and advocacy Australia Parliamentary Friends For ME/CFS "Emerge Australia along with members of the ME/CFS community and key stakeholders met in Canberra on Tuesday June 13th for the much awaited launch of the Parliamentary Friends of...

Week beginning 3rd July 2023 News, articles and advocacy Europe At the 9th Congress of the European Academy of Neurology on Underprioritized Neurology Conditions and Symptoms. One of the people participating in the discussion was Gracemarie Bricalli, representing the European ME Alliance...

For next week's news, go to this thread: News in Brief - July 2023