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Week beginning 20th November 2023 News, advocacy and media USA Government Announcement of Intent To Establish Federal Advisory Committee on Long COVID by the Office of the Assistant Secretary for Health, Department of Health and Human Services. Appointees will come from a range of professions...

Week beginning 13th November 2023 News and advocacy Trial by Error by David Tuller Cochrane Ends Silence on ME/CFS Exercise Review Developments A writeup about the update after over two years of silence from Hilda Bastian, head of the Independent Advisory Group about the development of a new...

Week beginning 6th November 2023 Part 2 of 2 Research recruiting participants Science for ME has a subforum for clinicial trials and other studies that are currently or will soon be recruitiing participants. Such studies from around the world are often registered at the Clinical Trials...

Week beginning 6th November 2023 Part 1 of 2 News and advocacy UK DecodeME - Last few days to join the research The questionnaire part of this large genetic study must be submitted before Wednesday 15th November at 5pm. That is also the last day for requesting a replacement spit kit. Note...

Week beginning 30th October 2023 News and advocacy UK DecodeME There is about week left for people in the UK over 16 with an ME/CFS diagnosis to sign up and complete the questionnaire for this large genetic study. Contribute your experiences before 5pm on 15th November. Those invited to...

For next week's news go to: News in Brief - November 2023

This thread has a Science for ME 'News in Brief' post for each week in November 2023 by a team including @Trish, @Kalliope and @ahimsa. Scroll down to see this week's news.

Week beginning 23rd October 2023 Part 2 of 2 Research news Yale School of Medicine ME/CFS, Long COVID, and Chronic Lyme Disease Research Aided by $3 Million in Donor Gifts to Yale School of Medicine About generous donations from Emily Fairbairn and Carol Sirot to fund the research of Akiko...

Week beginning 23rd October 2023 Part 1 of 2 News, advocacy and articles UK BACME British Association of Clinicians in ME/CFS 2023 National Services Survey Report has been published and provides "a very comprehensive view of the current provision of specialist ME/CFS care in the UK". It also...

Week beginning 16th October 2023 News, advocacy and articles UK DecodeME Webinar recorded on 12th October is now available as video, audio and transcript. Professor Chris Ponting, Sonya Chowdhury and Sian Leary discuss the questionnaire findings and timeline for completion of the study. Anyone...

Week beginning 9th October 2023 Part 2 of 2 Research ME/CFS research The American Journal of Medicine People With Long COVID and [ME/CFS] Exhibit Similarly Impaired Vascular Function - McLaughlin et al. Flow-mediated dilation measurements were from 17 each of ME/CFS, Long Covid and healthy...

Week beginning 9th October 2023 Part 1 of 2 News and advocacy Australia This month the ME/CFS Registry (You+ME, Aust.) and Biobank will be expanded and renamed the Australian ME/CFS and Long COVID (AusME) Registry and Biobank. Participants to include people aged 12+ with ME/CFS, Long COVID...

Week beginning 2nd October 2023 Part 2 of 2 Research news and commentary Austria The first Austrian ME/CFS Biobank has been under construction at the Medical University of Vienna since September 1, 2023, with support from an initial grant provided by the WE&ME Foundation. The project is led...

Week beginning 2nd October 2023 Part 1 of 2 News and advocacy Brazil The government has passed a law establishing care guidelines for fibromyalgia and "chronic fatigue" - waiting for final presidential approval. Article | Thread UK Government Work Capability Assessment: Open Consultation...

This thread has a Science for ME 'News in Brief' post for each week in October 2023 by a team including @Trish, @Kalliope and @ahimsa. Scroll down to see this week's news.

Week beginning 25th September 2023 Part 2 of 2 Research ME/CFS research Metabolites Bayesian Statistics Improves Biological Interpretability of Metabolomics Data from Human Cohorts - Brydges et al. "We use metabolomics data from three independent human cohorts that studied plasma signatures...

Week beginning 25th September 2023 Part 1 of 2 News, articles and advocacy Science for ME letters to Cochrane and petition update Cochrane has replied - but don't get excited yet "We wrote another open letter to Cochrane ... emphasising the need for urgent action. We have today, 30th...

Week beginning 18th September 2023 Part 2 of 2 Research news Norway The research council of Norway has allocated 11 million NOK (approximately $1 million) to a study titled "Impaired microcirculation and tissue hypoxia as a possible mechanism in ME/CFS". The study is led by Professor Karl...

Week beginning 18th September 2023 Part 1 of 2 News and advocacy JNNP Rapid Response: The ME community support NICE and reject the misguided attack in ‘Anomalies in the review process and interpretation of the evidence in the NICE guideline for [CFS/ME] - Spreag et al. JNNP has published an...

Week beginning 11th September 2023 Part 2 of 2 ............ Research news ScienceAlert New Blood Test For Chronic Fatigue Syndrome Has 91% Accuracy On the preliminary results from a study by Jiabao Xu et al on a blood cell-based test for ME/CFS. "The blood test differentiates between the...