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  1. mango

    Crowdfunding: Trial By Error [David Tuller]: Reporting on ME, CFS, ME/CFS, "medically unexplained symptoms," and related stuff, Fall 2020

    Jennie Spotila: David Tuller: Making Progress Together http://occupyme.net/2020/10/20/david-tuller-making-progress-together/
  2. mango

    Coronavirus - worldwide spread and control

    New Statesman: Sweden’s Anders Tegnell: We did not pursue “herd immunity” against Covid-19 https://www.newstatesman.com/world/europe/2020/10/sweden-s-anders-tegnell-we-did-not-pursue-herd-immunity-against-covid-19 They also say that Sweden's "impressive levels of social trust meant citizens...
  3. mango

    Coronavirus - worldwide spread and control

    No, I really do not feel we could ever say that Sweden "did the right thing". Just one example: how could anyone ever justify the massive number of elderly people who suffered and died locked up in care homes, without medical care, without any care at all (not even allowed to go to the toilet...
  4. mango

    Coronavirus - worldwide spread and control

    I very highly doubt that. Do you have evidence to back that up?
  5. mango

    Coronavirus - worldwide spread and control

    The situation is still not understood, I completely agree with you about that. Have you at all looked into the matter of why so many elderly people have been left to die without any medical care at all, especially in the earlier stages of the pandemic? I suspect at least a small part of the...
  6. mango

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Moved post It's so sad, everybody seems to know at least a few people who have long covid :( Lots of people in Sweden with long covid are already getting somatisation diagnoses :( A few of my pwME friends now have long covid too. Some of them are active in some of the very large Swedish...
  7. mango

    Does anyone have a list of common ME symptoms please?

    A few more: https://me-pedia.org/wiki/List_of_symptoms_in_ME_CFS https://www.stonebird.co.uk/symptoms.html https://ammes.org/symptoms-of-mecfs/
  8. mango

    Does anyone have a list of common ME symptoms please?

    Here's one of the most comprehensive lists I've seen so far: https://www.hfme.org/themesymptomlist.htm
  9. mango

    Coronavirus - worldwide spread and control

    (I haven't watched the episode linked above.) Meanwhile in Sweden: news articles about the fact that the numbers of covid-19 hospitalisations are increasing as are intensive care cases, the number of infected people in care homes has doubled over a very short period of time, there are outbreaks...
  10. mango

    News from Dysautonomia International

    Unfortunately no, I'm too ill. Will have to wait until they make the recordings of the sessions available in mid-November, and try to watch them in tiny chunks.
  11. mango

    Breathlessness and air hunger in ME/CFS

    I often feel out of breath, which in my case seems to be related to orthostatic intolerance. Sometimes just from sitting up in bed. PEM makes it much worse. When I'm having severe PEM it sometimes feels as if I'm on a very high altitude, as if the air is way too thin, as if there isn't enough...
  12. mango

    Signs of Intracranial Hypertension, Hypermobility and Craniocervical Obstructions in patients with ME/CFS (Pre-print 2019/published 2020) Bragée et al

    Thanks for letting me know. I'm not sure what's wrong, the post is still there. Does this one work better for you?
  13. mango

    Signs of Intracranial Hypertension, Hypermobility and Craniocervical Obstructions in patients with ME/CFS (Pre-print 2019/published 2020) Bragée et al

    He was using the same word one would use to describe for example the state of the soil in a flower pot or a flower bed. It's the opposite of packed/dense/compact/hard/heavy, so it can mean lightweight, that it's aerated/has a lot of air in it, that it's "fluffy" and porous. So yes, you could say...
  14. mango

    Sweden: Seminar for doctors on how to distinguish ME from chronic fatigue/burnout

    Just to clarify, by "this is an example of what is being taught at these seminars", I only meant the kind of stuff expressed in the Per Julin quote. Not the whole article or the bps stuff.
  15. mango

    Signs of Intracranial Hypertension, Hypermobility and Craniocervical Obstructions in patients with ME/CFS (Pre-print 2019/published 2020) Bragée et al

    (I'm crashed, unable to give a full recap. Sorry.) No new info. He was there to talk about their "new extraordinary findings", their research study that was published a while ago. Hypermobility, intracranial hypertension and craniocervical obstructions. He said it's one of the journal's most...
  16. mango

    Signs of Intracranial Hypertension, Hypermobility and Craniocervical Obstructions in patients with ME/CFS (Pre-print 2019/published 2020) Bragée et al

    Moved posts Björn Bragée was on TV today, on Malou efter tio (13 minutes, in Swedish): Nya ME-upptäckten: ”Långt över vad man kan förvänta sig” https://www.tv4play.se/program/malou-efter-tio/13296779
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