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  1. mango

    News from Scandinavia

    Public online event: Säg som det är - Samtal om ME. Vem kan hjälpa när botemedlet saknas? ("Tell it like it is - Conversations about ME. Who can help when there is no cure?") The Liberals in Region Jönköping are organising a public online event this Friday, 27 November. Thread about very...
  2. mango

    Does anyone have a list of common ME symptoms please?

    A slightly different kind of symptoms list by Dr Hng: For those of you who are unable or unwilling to visit Facebook, the same list is available on Google Drive:
  3. mango

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Article in a Swedish newspaper about Anna Amholt, a 20 years old professional ice hockey player who has been ill for more than 220 days. (ME is not mentioned.) Aftonbladet: Coronasjuk i 220 dagar – läggs in på sjukhus...
  4. mango

    Finland: Duodecim ME/CFS Guideline: Draft Published for Consultation

    Ooh, brilliant! Thank you so much :)
  5. mango

    Finland: Duodecim ME/CFS Guideline: Draft Published for Consultation

    It says that if you fill out the form and click through, you will be able to access the material. ETA:
  6. mango

    News from Scandinavia

    The Finnish Medical Society Duodecim recently published their ME/CFS draft guideline ("Good Practice Consensus Recommendation"). Comments can be submitted through a form on their website. Deadline is Friday, 4 December 2020. Thread here...
  7. mango

    Finland: Duodecim ME/CFS Guideline: Draft Published for Consultation

    The Finnish Medical Society Duodecim recently published their ME/CFS draft guideline ("Good Practice Consensus Recommendation"). Comments can be submitted through a form on their website. Deadline is Friday, 4 December 2020. Anna lausuntosi Krooninen väsymysoireyhtymä (ME/CFS) Hyvä käytäntö...
  8. mango

    Recruiting: ME Research UK: Investigating sensory processing and cognitive function in people with ME: a pilot study

    You don't have to be in the UK to participate in the online interview part of the project. International participants are welcome.
  9. mango

    United Kingdom: News from Forward-ME Group

    I think it's really important to remember that without the advocacy that has been done, we might have been in an even worse situation than we currently are. Successful advocacy isn't just about affecting change that moves us forward, it's equally important (if not more) to make sure things...
  10. mango

    Whitney Dafoe Updates

    Ditto.
  11. mango

    Whitney Dafoe Updates

    Very, very common.
  12. mango

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Aftonbladet: Svåra hjärnsymtom kan drabba även de med mild covid Professorn: Som en boxare mår efter att ha blivit knockad https://www.aftonbladet.se/nyheter/a/PRRyaJ/svara-hjarnsymtom-kan-drabba-aven-de-med-mild-covid Google Translate, English
  13. mango

    Webinar: Scientific Research on ME/CFS in the Age of COVID-19 - Hanson, Lipkin, Nath - Oct 26th, 2020, 6 to 7pm ET.

    Here's a transcript from the webinar, downloaded from the Zoom website.
  14. mango

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Red Clinic has published a statement on their website: http://www.redclinic.se/sv/index_sv.html
  15. mango

    BPS attempts at psychologizing Long Covid

    I wrote a bit about it a while ago, about the politics (insurance companies) that redefined whiplash in Sweden. Was a big debate back then... https://www.s4me.info/threads/structural-spinal-problems-and-me-blogs-and-social-media.11138/page-50#post-272180
  16. mango

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    A lot of info about the treatments etc in this Facebook post by a Red Clinic patient:
  17. mango

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Thank you so much for the recap, @Kalliope! I haven't been able to watch it myself, so I really appreciate it. :confused: indeed... I wonder if this is the research study they were talking about? https://www.s4me.info/threads/the-redbank-study-recruiting-red-clinic-jonas-axelsson.17027/
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