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There's an article today in Dagens Medicin (news website for healthcare professionals and decision makers), but it's paywalled. Stora Sköndal lägger ner ME/CFS-mottagning https://www.dagensmedicin.se/alla-nyheter/neurologi/stora-skondal-lagger-ner-me-cfs-mottagning/

RME has written a letter to Stockholm Regional Council (which apparently is the official name in English for Region Stockholm, which I've called "the county council" in my previous posts, sorry about that).

RME press release: Katastrof för ME-sjuka när specialistvård läggs ned https://www.mynewsdesk.com/se/rme/pressreleases/katastrof-foer-me-sjuka-naer-specialistvaard-laeggs-ned-3055160

Stora Sköndal has published a long text on their website today. (Personally, I'm surprised by how they chose to frame their reasons for closing...) https://www.storaskondal.se/vara-verksamheter/neurologisk_rehabilitering/mecfs-mottagning/

(Off topic.. Not about Rituximab or ME, but I couldn't find a better thread.) A Swedish psychologist/doctoral student (if that's the correct word in English?) at Karolinska Institutet is asking for reading recommendations on placebo and psychoterapy research. I believe she's genuinely interested.

I bought a pair of Bose QuietComfort for the equivalent of approx £130 last year (in Sweden). Not one of their latest models, but I think they are absolutely fantastic :)

Swedish opinion piece about children with long covid and the difficulties they are facing (including investigations by the social services, possibly meaning suspicions of FII, which could mean that they are at risk of being removed from their families). Barn långtidssjuka i covid får inte vård...

Thank you so much for everything! You truly deserve a massive lifetime achievement award :trophy@ :hug:

Public online event hosted by the Swedish EDS/HSD organisation: Webinar: Överrörlighet, ME och förträngningar i halsryggen ("Webinar: Hypermobility, ME and craniocervical obstructions") Monday, 7 December

A severely ill Swedish 15 year old girl is about to be removed from her family/home :cry: The mother writes in the comments that her daughter has been diagnosed by a specialist, but the social services are only listening to an ignorant pediatrician at the hospital.

In the journal of the Swedish medical association: Apropå! Autonom dysfunktion och covid-19 https://lakartidningen.se/opinion/debatt/2020/11/autonom-dysfunktion-kan-oka-forstaelsen-av-covid-19/

Are your comments about "unnecessary" and "unfair" referring to something I wrote? If so, what and why? All of it? Please expand. Is it not true that you/Bragée ME-center gave official notice of termination of your contract with Stockholm County Council in the beginning of March 2018, during...

Article in Läkartidningen, the journal of the Swedish Medical Association: Inflammation, långvarig trötthet och värk – uppdatering av kunskapsläget Lars-Gunnar Gunnarsson, Per Julin, Torbjörn Norén...

They get 3000 SEK for a patient's first visit with a doctor at the clinic, and 1 600 SEK for the following visits (much less for physios, psychologists, nurses, occupational therapists, dieticians etc). Compared to 150 SEK for a phone appointment with a doctor, and 650 SEK for a digital...

Not that I know of. The contract was problematic from the very beginning, and even worse so after the changes in 2018. It's simply not realistic, the amount of money the clinic is offered by the county council doesn't anywhere near reflect the reality of what it costs to care for ME patients...

The Swedish covid patient organisation is intentionally trying very hard to distance themselves from ME and pwME, and their lobbying is along the same lines... They are explicitly calling for exceptions just for themselves as a group, regarding medical care, sickness benefits etc. They don't...

Update posted yesterday by Liberalerna:

Here's an example from Sweden. A columnist/writer/nurse comments on a recently published BPS book on ME: Apropos bias, she recently wrote a book herself, about the replication crisis and bad research,... :rolleyes:

It's absolutely devastating news, a massive loss, very very sad :cry: It's by far Sweden's best biomedical ME clinic, especially for people with severe/very severe ME, and some of the best ME professionals in the country are working there, like Per Julin and Ewa Wadhagen Wedlund. It's...

There has been a change, Anders Kjellgren from Linköping will not be attending. :) The Liberals have posted an update on Facebook: