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Re: the "Superman" thing. Although I completely understand why, and agree that, it can be problematic in some contexts, I personally am getting the sense it's a way for Whitney to send the message "hold on, don't give up", encouraging us to to try and keep hope alive. In other words, maybe it's...

@Perrier English is not my first language, which perhaps might explain why I don't see this particular word as a problem in this context? To me personally, "discover" seems a completely reasonable word to use about a moment when you are getting a new understanding of something that was not...

I’ve read this book, and I absolutely loved it :) I think it’s amazing :) Sadly I’m not well enough to write a proper review, so I’ll just share some random thoughts for now. It’s really well written, beautifully told, and really well researched. It’s personal, moving, has great flow and...

https://www.facebook.com/whitneydafoe/posts/244340113770355

The Puzzle Solver: A Scientist's Desperate Quest to Cure the Illness that Stole His Son by Tracie White. Alternative title in the UK: Waiting For Superman: One Family's Struggle to Survive - and Cure - Chronic Fatigue Syndrome (expected publication 4 February, 2021). This is a nonfiction book...

I'm reading the book right now (The Puzzle Solver by Tracie White). The quote from the article is true to the book. It's in the chapter where they talk about analysing the chart of Whitney's metabolome test results (page 100 in the ebook). I'm 66% in and so far the book is fantastic, brilliant...

A Swedish novel about ME, based on a true story, is to be published in a couple of months. (I have not read the book, so this is not a recommendation, just info.) Blunda och räkna till hundra ("Close your eyes and count to one hundred") by Pernilla Soland. In the comments below the linked...

Article about ME on the Swedish Brain Foundation's website. Hjärnfonden: "Sjukdomen har stulit mitt liv" https://www.hjarnfonden.se/2020/12/sjukdomen-har-stulit-mitt-liv/ Google Translate, English ("The Disease Has Stolen My Life")

I've been trying to find this preprint, but no luck so far. Does anyone have a link to share? If the info I have received is correct, it's by a researcher called Jessica Eccles. https://www.researchgate.net/profile/Jessica_Eccles...

Podcast episode (in Swedish) by the Swedish National Board of Health and Welfare

A paywalled news article about Björn Eklund's upcoming book about his recovery from ME, through Rituximab. Sundsvalls Tidning: Valet stod mellan osäker medicin och dödsklinik – efter tio år vann Björn kampen mot sjukdomen...

I've posted in the News from Scandinavia thread about a Swedish non-fiction book that is about to be published, about a journalist with severe ME who went from bedbound to running marathons after Rituximab: https://www.s4me.info/threads/news-from-scandinavia.647/page-60#post-309115

A new Swedish non-fiction book about ME is to be published soon. It's written by a journalist who got ME, became bedbound, and is now running marathons, thanks to Rituximab. The title is "Från sängbunden till maraton eller Den stora ME-skandalen" ("From Bedbound to Marathon, or The Great ME...

There's a thread about Holger here: https://www.s4me.info/threads/‘help-holger-now’-video-about-a-swedish-man-with-very-severe-me.15874/

Some notes and comments. Please correct me if I got something wrong. Of the 2 500 people who have been referred to Bragée's clinic so far, 1 100 have gotten a ME diagnosis. Bragée mentioned that the contract states, as do the referral routines, that the people referred to the clinic has got to...

It was in this context: They didn't expand on it much, unfortunately. I'm glad they mentioned it, and I would have liked to see them discuss it a bit more in depth.

Unfortunately the presentation was not recorded by KI, but I made an audio recording for my own personal use (because I'm too ill to listen to long talks, I have to listen back later, a few minutes at a time). I'd be happy to share it, if anybody wants to have a listen.