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  1. mango

    News from Scandinavia

    "ME-foreningen Gjestebloggen: Nå er det f**n meg på tide at de våkner og tar sykdommen på alvor." http://www.me-foreningen.info/2018/03/29/gejsetebloggen-na-er-det-fn-meg-pa-tide-at-de-vakner-og-tar-sykdommen-pa-alvor/ Google Translate, English ("Norwegian ME Association, Guest Blog: It's about...
  2. mango

    meditation

    There are tens of thousands of different kinds of meditation techniques. If you don't like one, try another one instead :) There's no need at all to focus on your body, there are many many other techniques to choose from :) Yes, meditation has helped me a lot over the years, coping-wise. But it...
  3. mango

    News from Scandinavia

    This article in Fagersta-Posten is behind a paywall, so I haven't read it. I'm not a fan of the headline... Tina blev kroniskt sjuk efter influensaspruta: ”Jag är inbillningsfrisk” https://www.fagersta-posten.se/logga-in/tina-blev-kroniskt-sjuk-efter-influensaspruta-jag-ar-inbillningsfrisk...
  4. mango

    Breathwork

    I've done a lot of pranayama and other yogic therapeutic breathing exercises over the years. Some advanced practices over a long period of time, as well. I started long before I got ME. Breathing practices haven't made me any less ill, and I don't find them helpful for symptom relief either...
  5. mango

    Stunning photo of person with ME wins award

    Big congrats to photographer Beatrice Lundborg who won second prize in the category "Culture & Entertainment" in the Swedish competition Photo of the Year :) Here's a Google translation of the caption: Full story (in Swedish) and an absolutely gorgeous full-size, high-quality version of the...
  6. mango

    News from Scandinavia

    Opinion piece by Live Landmark in a Swedish newspaper... :mad::sick: Expressen: ME-epidemin är på väg till Sverige https://www.expressen.se/debatt/me-epidemin-ar-pa-vag-till-sverige/ Google Translate, English ("The ME epidemic is on its way to Sweden")...
  7. mango

    News from Scandinavia

    I'm sorry, I'm unable to share more details about the research in question. But yes, in my opinion, definitely serious risk of harm... the stuff of nightmares :( It was at the planning stage when I last heard. I'm still passionately hoping that he will come to his senses and cancel all the plans...
  8. mango

    News from Scandinavia

    Sure, I'm happy to share my personal opionions. Yes, he's definitely controversial. He was controversial as a public person even long before he took an interest in ME. I've never met him in person. My opinions are mainly based on what I've read: interviews, articles on his website and...
  9. mango

    News from Scandinavia

    In this article, Björn Bragée talks about their approach to ME, at their clinic in Stockholm. Må Bra: Smärtläkarens positiva besked om ME: "Kommer att botas" https://www.mabra.com/smartlakarens-positiva-besked-om-me-kommer-att-botas/ Google Translate, English ("The pain doctor's positive...
  10. mango

    News from Scandinavia

    Video replay available here. Karin's interview starts 23:36 min in. https://www.svtplay.se/video/17048214/fraga-doktorn/fraga-doktorn-sasong-21-karin-alvtegen-om-me?info=visa ETA: Great interview! Thank you so much Karin, you did amazing! :):thumbup:
  11. mango

    News from Scandinavia

    Borås Tidning: Öka kunskapen om ME i vården http://www.bt.se/debatt/oka-kunskapen-om-me-i-varden/ This is an opinion piece written by Dr Carl-Gerhard Gottfries, Gottfries Clinic (biomedical ME/CFS and Fibromyalgia centre + research). Google Translate, English ("Increase the knowledge of ME in...
  12. mango

    News from Scandinavia

    Again, I really wish that were true... That's definitely not my experience or what I see taking place, at all. Not in the part of the country that I live in, at least. No acceptance, no knowledge, no respect, no compassion... But I'm genuinely happy for those of you who might have had better...
  13. mango

    News from Scandinavia

    :( I'm just speculating now, but based on what little I've seen from somewhat behind the scenes (timeline, questions asked etc) I wouldn't rule out the possibility that the BPS extremists in question were in fact the ones who set the ball rolling, who had a clear agenda and contacted the...
  14. mango

    News from Scandinavia

    P4 Extra: 15-åriga Johan har sjukdomen ME: Jag hänger fast vid hoppet att bli frisk [audio 6:44 min + text] http://sverigesradio.se/sida/artikel.aspx?programid=2151&artikel=6891962 P4 Extra: Vad är ME -- Jonas Blomberg, professor emeritus i klinisk virologi [audio 4:28 min]...
  15. mango

    News from Scandinavia

    SVT.se: Emil Heiling är en av de som drabbats av sjukdomen ME https://www.svt.se/nyheter/inrikes/han-ar-en-av-de-som-drabbats-av-sjukdomen-me SVT.se: FAKTA: Det här är sjukdomen ME https://www.svt.se/nyheter/inrikes/det-har-ar-sjukdomen-me SVT.se: 4 frågor: Det behöver du veta om ME...
  16. mango

    News from Scandinavia

    If only that were true... Some really vile stuff was written in this article, published today... :sick::cry::eek::(:banghead::mad: Expressen: Omstridda diagnosen ME ökar snabbt – men splittrar läkarna https://www.expressen.se/nyheter/qs/diagnosen-delar-lakarna-i-tva-lager/ Google Translate...
  17. mango

    Zaher Nahle leaves Solve Me/cfs

    Oh no :( Why? What happened?
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