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Brilliant blog article about the importance of openness and transparency in the conversation about ME, written by an occupational therapist/pwME. In Swedish. Vi kräver att ALLT som kan göras också görs! https://livetsbilderblog.wordpress.com/2018/05/31/vi-kraver-att-allt-som-kan-goras-ocksa-gors/

Expressen: ME-sjuka Camilla, 52, kämpade in i det sista ("ME sufferer Camilla, 52, fought until the very end") https://www.expressen.se/kvallsposten/me-sjuka-camilla-52-kampade-in-i-det-sista/

Great talk (in Swedish) on POTS by Dr Artur Fedorowski, at an event last Wednesday hosted by the Ehler-Danlos Syndrome patient organisation in Lund, Sweden: Here's a written summary (also in Swedish): https://snoflinganblog.wordpress.com/2018/05/25/forelasning-om-pots/ Google Translate, English

Expressen: Alma gick in i väggen när hon var 14 år: ”Jag saknar mitt liv” https://www.expressen.se/gt/alma-gick-in-i-vaggen-nar-hon-var-14-ar-jag-saknar-mitt-liv/ Alma experienced burnout at age 14: "I miss my life"

Dagens Medicin: Utsatta patienter får inte träffa specialist ("Vulnerable patients are not allowed to see a specialist") https://www.dagensmedicin.se/artiklar/2018/05/23/utsatta-patienter-far-inte-traffa-specialist/ Paywalled. "Extremely high pressure forces ME/CFS specialist centres to say no...

Fingers crossed! Alternative links to the same articles (easier to read and autotranslate): http://www.ugeavisen-esbjerg.dk/esbjerg/ME-sagen-Minister-tager-fat-om-ME-problemer/artikel/353513 http://www.ugeavisen-esbjerg.dk/esbjerg/ME-sagen-Et-lille-lys-i-moerket/artikel/353482

Another favourite of mine is Mary Dimmock's (@Medfeb) book 30 Years of Disdain. I think it's absolutely fantastic and well worth a read :) Actually I'd say a 'must read' :) There are two versions, the shorter summary version is probably also a bit too long for a casual reader, but if there's...

Another excellent source for you to use as inspiration if you'd like, is the website of Anne Örtegren's (@Anne O) ME/CFS newsletter: mecfsnyheter.se (There's a link to mecfsnyheter.se at the very bottom of Anne's final letter, the one that @Snowdrop suggested.) On the front page of the...

@Snowdrop mentioned Anne Örtegren, @Anne O. Anne used to make super helpful factsheets (I used to help her). Maybe that could be an idea for you to look into? The documents are all in Swedish, but maybe you could take a look at a few of them (using Google Translate) and use them as inspiration...

The Swedish charity Hjärnfonden (The Swedish Brain Foundation) ran an ad in social media a few weeks ago. Their ad on Instagram consisted of an image, a text and a video that all explained that brainfog "is a stress-related mental health issue", called for "a friendlier work-climate" and the...

Some more context. Ljungar is -- in my opinion -- one of the most influential BPS proponents in Sweden, although she often describes herself as a having a "biomedical" view/approach. To give you an idea of what her view of this disease is, here's a telling example. She was the one behind the...

To give some context, here's another study by the same author: A comment I wrote a while ago, somewhere else: I think they are trying to say that the effect of CBT could be increased by adding a couple of "psycho-educative sessions of emotional awareness training", since CFS patients have...

(This is a comment I wrote a while back, somewhere else. I think it's worth repeating.) There are some major underlying problems here, and in all other studies using the same set of questionnaire data. I asked a well-informed friend of mine, who used to be a patient at the ME/CFS-centre that...

I agree :)

They are doing it again, 13 September. This time in Göteborg (Gothenburg). https://magnetevent.se/Event/utmattningssyndrom-och-mecfs-nu-i-goteborg-20775/

ME is currently in the news related to a case of alleged research fraud linked to Karolinska Institutet ("one of the world's foremost medical universities and is Sweden's single largest centre of medical academic research", according to their own website). "A suspected fake scientist is...

The situation is horrific, yes, absolutely. But it's simply not true that Försäkringskassan (FK, the Swedish Social Insurance Agency) consistently denies all persons with the diagnosis ME sickness benefit. Lots and lots of people diagnosed with ME actually get sickness benefit or sickness...

Have you had a look at the comments on Dagens Medicin's article? The website is only for healthcare professionals. Every time they publish something on ME, the clowns show up... For example, this comment: https://www.dagensmedicin.se/artiklar/2018/05/07/kunskap-om-kronisk-trotthet-for-lag/ "DL...

Sundsvalls Tidning: Därför ställs tomma skor ut i Sundsvall i en stor aktion "This is why empty shoes are displayed in Sundsvall during a big action" https://www.st.nu/vasternorrland/sundsvall/darfor-stalls-tomma-skor-ut-i-sundsvall-i-en-stor-aktion