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  1. mango

    Helmfrid: "Reimer [...] distorts the scientific discussion about ME/CFS in Sweden"

    The pdf is available on Dropbox as well: https://www.dropbox.com/s/pk42813t8c6pqh3/Reimer%20SVT%20Opinion.pdf?dl=0
  2. mango

    Helmfrid: "Reimer [...] distorts the scientific discussion about ME/CFS in Sweden"

    New brilliant article by Sten Helmfrid! It's an excellent and well-written reply to an opinion piece by BPS proponent Mats Reimer. The full-text is in Swedish. Well worth a read :thumbup: "Abstract In an article on SVT Opinion [website of the National Swedish Television], Mats Reimer expresses...
  3. mango

    News from Scandinavia

    Here's a document that gives formal details about the new contract. [EDITED TO ADD: However, it's not the final version. The final version, which was signed yesterday, might be different.]...
  4. mango

    News from Scandinavia

    No, it doesn't say anything about what kind of treatments...
  5. mango

    News from Scandinavia

    ME/CFS: Bragée ME-Center får nytt uppdrag Nytt avtal med spännande utmaningar till ME-vården i Stockholm https://www.bragee.se/bragee-me-center-far-nytt-uppdrag "ME/CFS: Bragée ME-Center gets a new assignment. New contract with exciting challenges for ME healthcare providers in Stockholm"...
  6. mango

    The prevalence and impact of psychoneuroimmunological factors in ME/CFS: Effects and mechanisms of ACT (2019) Olsson et al.

    And this one is about session 11 Recruitment, where they will identify behaviours in the patient's surroundings that "steer" towards avoidance. And then make a plan to help these other people coach the patient in a more adequate manner...
  7. mango

    The prevalence and impact of psychoneuroimmunological factors in ME/CFS: Effects and mechanisms of ACT (2019) Olsson et al.

    This is also from the ethical approval application document. It says that one of the main goals is to introduce terminology based on the patients' problematic behaviours and avoidance behaviours in relation to pain and other kinds of [discomfort, uncomfortable feelings]. It says that during the...
  8. mango

    The prevalence and impact of psychoneuroimmunological factors in ME/CFS: Effects and mechanisms of ACT (2019) Olsson et al.

    These posts have been moved from this thread: Sweden: ACT for ME/CFS - an Open Case Trial This is from the ethical approval application document. It says, roughly translated: "Treatment The aim of the treament is to get the participants to return to an active life, which means to gradually...
  9. mango

    Sweden: Acceptance & Commitment Therapy for ME/CFS – A feasibility study, 2019, Jonsjö et al

    Gunnar Olsson, one of the main investigators, was a speaker at a BPS conference in Norway a couple of weeks ago, according to the program posted in this thread: https://www.s4me.info/threads/biopsychosocial-seminar-in-norway-june-2018.2070/ The title of his talk was "The opioid-epidemic - from...
  10. mango

    Sweden: Acceptance & Commitment Therapy for ME/CFS – A feasibility study, 2019, Jonsjö et al

    This study was never really about ACT, it was about CBT/GET. In my opinion, they use the term ACT in a very misleading way throughout the protocol etc.
  11. mango

    Danish recommendations on 'Funktionelle lidelser'

    I'm so so sorry to hear this :cry: My heart goes out to you, dear neighbours :hug:
  12. mango

    News from Scandinavia

    ME mentioned on Rapport (one of the two main news programs on Swedish TV) tonight: https://www.svtplay.se/video/18113711/rapport/rapport-10-jun-18-00-2 Available to watch online for 7 days from today.
  13. mango

    OMF/Ron Davis Research Update May 2018

    Transcript available here: https://www.omf.ngo/2018/05/22/research-update/transcript-dr-ron-davis-update-may-2018/
  14. mango

    OMF/Mark Davis Research Update, June 2018

    OMF has now published a transcript, available here: https://www.omf.ngo/2018/06/06/mark-davis-research-update/transcript-dr-mark-davis-update-june-2018/
  15. mango

    We bought a house!:)

    Wonderful! Big congrats :)
  16. mango

    News from Scandinavia

    SVT Nyheter Halland: ME-sjuka Loise: ”Har inte hövligheten att ha ihjäl en” https://www.svt.se/nyheter/lokalt/halland/me-sjuka-loise-har-inte-hovligheten-att-ha-ihjal-en 3 min video clip filmed by Loise who is ill with ME. "It doesn't have the decency to kill you."
  17. mango

    News from Scandinavia

    SVT Nyheter Halland: Därför har Försäkringskassan svårt att hantera ME https://www.svt.se/nyheter/lokalt/halland/darfor-har-forsakringskassan-svart-att-hantera-me "This is the reason why Försäkringskassan (the Swedish Social Insurance Agency) has problems managing ME" They claim it's because...
  18. mango

    News from Scandinavia

    SVT Nyheter Halland: ME-forskaren: ”Det finns en strimma hopp” https://www.svt.se/nyheter/lokalt/halland/me-forskaren-det-finns-en-strimma-hopp ME-researcher says: "There's a glimmer of hope" Very short text + 1 min audio. Emeritus professor Anders Rosén mentions a few common comorbid...
  19. mango

    Help for sound sensitivity

    I, too, am using Peltor. I find the X5A very effective but, like Gecko mentioned, they do put a lot of pressure on the jaw and they are quite bulky too. I have another pair of Peltor as well: CE95, much less bulky and with less pressure, but they are not as effective so it's best to use them in...
  20. mango

    News from Scandinavia

    It's important to remember that the kind of "decision support"/guidelines they are talking about here (försäkringsmedicinskt beslutsstöd, FMB), were originally created in response to the increasing number of people on sick leave in the late 1990s and the beginning of the 2000s. In other words...
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