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  1. mango

    Sweden - RME news

  2. mango

    Sweden - RME news

  3. mango

    Sweden - RME news

    Recommended hashtags on Twitter etc are #svmecfs and #stegförsteg2018 (steg för steg = "step by step")
  4. mango

    Sweden - RME news

    Livestream from Stockholm starts in a couple of minutes.
  5. mango

    News from Scandinavia

    Excellent question. I don't know who. I don't know why, on what basis/merit, either. Trying to find out. Trying to compare with other expert groups from other similar evidence report projects as well, to find out if this is common.
  6. mango

    Swedish Government: More knowledge is needed to better support people with CFS

    In the attached slide we perhaps learn a bit about the expert's understanding of correlation and causation? Very rough translation: "Longterm sick leave Earlier means more dangerous Those who take early retirement due to an illness or disability at a young age (25-30 years old) run approx 7-8...
  7. mango

    Swedish Government: More knowledge is needed to better support people with CFS

    Here's a news article from 2009, about the book one of the above experts wrote. https://www.metro.se/artikel/det-kan-vara-farligt-att-vara-sjukskriven-xr (I haven't been able to find anything about their views on ME, CFS or MUS etc specifically. Except for the mention of "yuppie's disease"...
  8. mango

    Sweden - RME news

    Today is the roundtable meeting in Stockholm.
  9. mango

    News from Scandinavia

    Here’s a very sparse info page about the ME/CFS evidence review SBU is currently working on in Sweden. It’s part of Socialstyrelsen’s (The National Board of Health and Welfare) project to develop guidelines. https://www.sbu.se/sv/pagaende-projekt/me--myalgic-encephalomyelitis/ According to...
  10. mango

    Petition against National Competence center for CFS/ME with BPS approach in Norway - anyone can sign

    Yes, I'd love to sign it! She's doing such an amazing job.
  11. mango

    Petition: Per Fink Should Not Spread Lies about ME at Columbia University!

    If you continue reading that Twitter thread, she also writes this:
  12. mango

    Sweden - RME news

    Livestreams have now been scheduled on YouTube: ME/CFS-dagarna 2018 - Stockholm ME/CFS-dagarna 2018 - Göteborg
  13. mango

    News from Scandinavia

    That's fantastic, I'm very happy for you :) At my end things are very very different... For example, I've had a toothache since January this year, and I keep being denied treatment because of ME. I've filed several complaints (with the help of an anti-discrimination bureau; I'm way too sick to...
  14. mango

    News from Scandinavia

    Yes, really :( I've read some early drafts from a couple of different ongoing projects (nothng from Socialstyrelsen, though), and I'm not feeling happy nor hopeful about it -- that's my personal opinion based on what I've read so far. Sadly, some very influential people are pushing hard for the...
  15. mango

    News from Scandinavia

    Let's do more than just hope, let's keep doing all we can to make sure it will be all biomed, not bps. Unfortunately the Cochrane reports are very highly regarded here in Sweden -- including the one on CBT/GET -- especially in the context of evidence based treatments etc.
  16. mango

    Netflix "Afflicted" - ME included

    https://help.imdb.com/article/imdb/track-movies-tv/the-vote-average-for-film-x-should-be-y-why-are-you-displaying-another-rating/G3RC8ZNFAGWNTX4L?ref_=helpart_nav_9# https://help.imdb.com/article/imdb/track-movies-tv/weighted-average-ratings/GWT2DSBYVT2F25SK#
  17. mango

    Netflix "Afflicted" - ME included

    That's not very effective, I'm afraid. It mainly tells the algorithm what other shows and movies to recommend (or not to recommend) to you. A much more effective way to get your opinions across to Netflix would be to write them a message. One of the easiest ways to do this is to click on the...
  18. mango

    Central sensitization: a matter of concern

    It seems to me that CSS is one of the worst wolves in sheep's clothing at the moment, as it appears to successfully fool even many well informed pwme and patient representatives, even people who are otherwise fully aware of the problems with BPS and MUS etc. I find that very worrying. As far as...
  19. mango

    The MEpedia page on Myalgic Encephalomyelitis

    Please do, I'd love to read it! I find your "devil's advocate comments" very interesting and helpful -- and hugely frustrating, too :) Even if maybe it doesn't end up on MEpedia, it could still be very helpful in so many other contexts. I love stuff that forces me to think about things in...
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