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  1. mango

    News from Scandinavia

    Thanks. Yes... I had to keep fighting in courts for more than 9 years, so I know from experience how horrendous it can be :( It almost killed me. It's a massive problem here in Sweden, not only for PWME (but perhaps more for us than most others?).
  2. mango

    News from Scandinavia

    There have been so many similar judgements over the years, also in the higher courts, but sadly they don't seem to make a difference :( It wouldn't surprise me at all if Sture will have to go to court again, for the next period of time (after Jan 31, 2018), and the next, and the next... It's...
  3. mango

    The development of an instrument to assess post-exertional malaise in patients with myalgic encephalomyelitis and CFS (2018) Jason et al.

    The DPEMQ questionnaire itself is available through the "supplemental material" link on the page linked in Cheshire's post. It's free to download, not paywalled...
  4. mango

    Cochrane ME/CFS GET review temporarily withdrawn

    Part 3, about the news articles in Dagens Medicin and Läkartidningen: Pacegranskaren: Mycket känslor och lite vetenskap – igen https://pacegranskaren.wordpress.com/2018/10/23/mycket-kanslor-och-lite-vetenskap-igen/ Google Translate, English ("Lots of feelings, little science - again")...
  5. mango

    Petition: [Finland] ME/CFS IS NOT A FUNCTIONAL DISORDER – WE CALL FOR APPROPRIATE TREATMENT [all can sign]

    Anyone (international) is welcome to sign the petition, right? Maybe make that clearer in the thread title?
  6. mango

    Cochrane ME/CFS GET review temporarily withdrawn

    In Läkartidningen today (Sweden) http://lakartidningen.se/Aktuellt/Nyheter/2018/10/Cochrane-drar-tillbaka-MECFS-oversikt/ Google translate, English...
  7. mango

    Cochrane ME/CFS GET review temporarily withdrawn

    Short news article today in Dagens Medicin, Sweden https://www.dagensmedicin.se/artiklar/2018/10/22/cochrane-drar-tillbaka-me-oversikt/ Google translate, English...
  8. mango

    Swedish Government: More knowledge is needed to better support people with CFS

    The project manager at SBU is Agneta Pettersson. Her interests seem to be depression and anxiety... at least according to this and this.
  9. mango

    Cochrane ME/CFS GET review temporarily withdrawn

    Part 2: Pacegranskaren: Låt oss fokusera på den vetenskapliga kritiken https://pacegranskaren.wordpress.com/2018/10/19/lat-oss-fokusera-pa-den-vetenskapliga-kritiken/ Google Translate, English ("Let's focus on scientific criticism")...
  10. mango

    Sweden - RME news

    Occupational therapist Ewa Wadhagen Wedlund, who just finished her talk, is really brilliant. I truly hope someone will add English subtitles to the YouTube video when it is published.
  11. mango

    Sweden - RME news

    New link for the second part of the livestream
  12. mango

    Sweden - RME news

    The video quality isn't great today, unfortunately. RME commented in the chat that an edited video (recorded with a different camera, from a better angle) will be published in a couple of weeks.
  13. mango

    Sweden - RME news

    The livestream is about to start any minute now
  14. mango

    Cochrane ME/CFS GET review temporarily withdrawn

    Great comment by Jörgen Jelstad on Facebook (in Norwegian)
  15. mango

    Sweden - RME news

    The politician who gave the opening talk has blogged about it here: http://wp.kristdemokraterna.se/ellabohlin/2018/10/17/okad-kunskap-om-sjukdomen-me-cfs/
  16. mango

    Sweden - RME news

    Yes, the recording will be on YouTube later.
  17. mango

    Sweden - RME news

  18. mango

    Sweden - RME news

    I'm sorry, I'm unable to listen myself (too ill). I'll try to listen back to the recording later, when I can pause often etc. I'll let you know if I find any written summaries posted in any of the Swedish groups.
  19. mango

    Sweden - RME news

    "Highlighting what criteria are being used. Canadian criteria ICC and SEID demand PEM (Post-Exertional Malaise) which the Oxford criteria don't do and therefore capture much more [people] and therefore give completely different results. Dr Katarina Lien, Oslo University Hospital #svmecf...
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