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I think this could possibly be this one? Acceptance & Commitment Therapy for ME/CFS (Chronic Fatigue Syndrome) – a feasibility study (thread here).

From the English summary of the Research Plan/Ethical Approval Application "Purpose and Aims [...] The overarching aim of this project is to evaluate ACT for patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, to investigate if, how, and for whom this treatment works." "Project...

So sorry for the split thread, guys! This is so confusing... In the published article it says that the participants were recruited between 2013 and 2016. In the comments I made earlier (now moved to the new thread) I was referring to an ethical approval application document which I thought...

One more article today, with a quote by the owner of Bragée ME Center (the clinic where the MED Study takes place): https://www.expressen.se/gt/matilda-26-tillbaka-pa-sjukhuset-efter-blodpropp/ It also says that the surgery in Barcelona will cost approx 800 000 SEK (75 800 EUR, 85 700 USD).

Thank you so much! :hug: I really wish I could come here and hang out more often, but I'm still suffering a bad relapse so I need to rest more. I just thought that this was probably something that you guys would find interesting, so I wanted to pop in here and share.

I don't know, I've never talked to him myself and I haven't been able to find much at all online about his thoughts on ME. There's been a few news articles the last few days, about a Swedish woman diagnosed with EDS, CCI and ME, where he has been quoted. She went to London for a special kind of...

It will be very interesting to see where this leads. Are they really on to something, or is it a case of "if all you have is a hammer, everything looks like a nail"? BCB is new to ME, his background is in neck and back related pain https://ki.se/en/people/bochbe

And proper understanding and reporting of harms and deterioration! They really must start to recognize PEM and the risks involved when increasing activity regardless of symptoms/worsening of symptoms etc. This is a massive problem :( They even used a PACE article as a reference in the ethics...

No sorry, I haven't seen anything published yet. Here's the link to Bragée ME Center, though https://www.bragee.se/

:cry::mad:

"The research questions are: 1. To what extent do neurological disorder findings from the cervical spine occur in patients referred for investigation of ME/CFS? 2. What is the correspondence between diagnosis of nerve impact on symptoms and neurological examination? 3. What is the...

"The assumption underlying the study is that within the ME/CFS cohort there is a significant group of patients with changes in upper and/or lower neck joints that express themselves as neurological abnormalities." The source of this info is the Ethical Review Authority application.

Inclusion criteria: "Participants are recruited consecutively among adult patients referred to ME Center (n = approximately 200). Patients and controls will be asked in writing for consent to include the results of the examinations in the study, when receiving letters and forms from ME Center...