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  1. mango

    Ron Davis’s big immune study is looking at HLA genes (HLA, WTF?) Here’s the story. [Simon M blog]

    Maybe possibly perhaps @Anna H can help..? (Maybe if you can make a transcript of that specific part, we could then run it through Google Translate and tidy it up together?)
  2. mango

    News from Scandinavia

    #MEvårdsaknas handed over the petition to the parliamentary committee on health and welfare today. More than 9000 signatures! :balloons::party::thumbup:
  3. mango

    News from Scandinavia

    Today was the last day of the Nordingrå trial. The sentence is expected to be announced on Monday November 18. Most of the news articles are behind paywalls. According to one article, the main reason the procecutor gives for demanding a 2 year prison sentence for manslaughter is an earlier...
  4. mango

    News from Scandinavia

    Press release by #MEvårdsaknas: ME-sjuka i protest mot obefintlig vård! [People with ME in protest of non-existent care!] https://www.mynewsdesk.com/se/nummer-mevaardsaknas/pressreleases/me-sjuka-i-protest-mot-obefintlig-vaard-2942429 Petition...
  5. mango

    News from Scandinavia

    Mottagning för ME-patienter dröjer – politiker i Västerbotten kritisk https://www.svt.se/nyheter/lokalt/vasternorrland/specialistmottagning-for-me-patienter-drojer-regionpolitiker-i-vasterbotten-kritisk
  6. mango

    News from Scandinavia

    TRIGGER WARNING: Suicide, death. Another article with comments on the ongoing trial (a man in Sweden charged with manslaughter for helping his severely ill wife end her own life). The former chairperson of the local chapter of the patient organisation RME is sharing her personal views on...
  7. mango

    News from Scandinavia

    Blog article by #MEvårdsaknas, commenting on the false information that was published recently. Sant eller falskt - glädjebesked eller fake news? [True or false - wonderful announcement or fake news?] https://mevardsaknas.wordpress.com/2019/11/10/sant-eller-falskt-gladjebesked-eller-fake-news/...
  8. mango

    News from Scandinavia

    "tiredness and exhaustion" would be a more literal translation :)
  9. mango

    News from Scandinavia

    Great opinion piece published in Dagens Samhälle, by the people behind #MEvårdsaknas :) Signed by among others Karin Alvtegen, pwME and famous/beloved author. (It's a slightly modified version of the blog article linked above.) Rätten till liv först! [Right to life, first!]...
  10. mango

    News from Scandinavia

    I'm sorry, but I have strong doubts about this. It's the same project that I wrote about earlier in this thread: The local patient organisation let its members know 21 September 2019 that they had received news from the Region Västerbotten management (Regionledningen i Västerbotten), saying...
  11. mango

    News from Scandinavia

    In other news in Sweden today, not strictly ME related but still relevant: P4 Väst: Sjukresor med sop- och glassbilar upprör https://sverigesradio.se/sida/artikel.aspx?programid=125&artikel=7337895 Sadly, this is not a joke...
  12. mango

    News from Scandinavia

    More from the debate about assisted dying. This is from an editorial written by Swedish journalist Sofia Mirjamsdotter. Ingen ska behöva längta efter döden för att samhället sviker ["No one should have to long for death because society is letting them down"]...
  13. mango

    News from Scandinavia

    More great content from #MEvardsaknas https://mevardsaknas.wordpress.com/ The above mentioned trial has sparked a public debate about assisted dying (in general, not just in relation to ME). In this important blog article #MEvardsaknas argues that the devastating lack of care and social...
  14. mango

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    Could you please expand a bit on this and explain in detail? I'd really like to understand.
  15. mango

    Rituximab and placebo response

    Could you please expand a bit on this and explain in detail? I'd really like to understand.
  16. mango

    News from Scandinavia

    TRIGGER WARNING: suicide, death. There are several news articles about the trial that started today, a man charged with manslaughter for helping his severely ill wife end her life in March 2019. Most of the news articles are behind paywalls, but here are some open ones (in Swedish)...
  17. mango

    News from Scandinavia

    Yes, unfortunately Skandia is currently sponsoring psychosocial research :( This study, for example: https://www.s4me.info/threads/sweden-act-for-me-cfs-an-open-case-trial.4684/
  18. mango

    News from Scandinavia

    5 262 :) #MEvårdsaknas's blog has published quite many posts about pwME's individual situations and experiences regarding medical care (most of it neglect, iatrogenic harm, misdiagnoses, stigma, discrimination, lack of medical care etc), and they all paint a very real and sad picture of what...
  19. mango

    News from Scandinavia

    Sofias Änglar (Sofia's Angels) is a Swedish lifestyle tv show. They help people who have been in accidents or suffered other traumatic events by making changes to their homes/houses. In this week's episode they helped a person with ME, and his family. According to comments I've read (I haven't...
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