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Signs of Intracranial Hypertension, Hypermobility and Craniocervical Obstructions in patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Björn Bragée, Anastasios Michos, Brandon Drum, Mikael Fahlgren, Robert Szulkin, Bo C Bertilson. Preprint: https://osf.io/qwn5h/

An illustration of what level the Swedish ME deniers prefer to keep the debate at... This woman is a professor and consultant (has more than 40 000 followers on Twitter). If there were medals for patience, I know someone who deserves a big gold one..! :trophy@

On the news (television) yesterday, 4 minutes long: Osynlig sjukdom drabbar tiotusentals svenskar ["Invisible illness affects tens of thousands of Swedes"] https://www.tv4play.se/program/nyheterna/12511495 All media coverage of #MEvårdsaknas is now listed on their website. (Much more than what...

Etc...

As @Kalliope already mentioned, Prof Jonas Blomberg is sadly no longer alive. The application is dated 9 September 2019, which is after he passed. I'm not sure what his contributions would be to this study, maybe the planning of it?

Why would you post something if you don't even know if it's true? A lot of this is very easy to fact check, even if you don't understand Swedish. For example, your text repeatedly says "for years". I'm not sure if that's a helpful reframing of what has been said already. ME Center opened in...

About people being free to opt out or decline the invitation to take part in research studies and other experiments. It might not always be so easy for people to say no, even though they have a right to. One possible reason, for example, is that the contract Bragée ME Center has with Stockholm...

From an earlier thread:

I've written a bit about this in some of the older threads, for example:

I can't remember ever reading about altered temperature perception in ME before (could be that I simply have forgotten). However, I've seen it mentioned in Jen Brea's posts a few times, for example:

Well, we know that Bragée ME Center uses the Canadian criteria. I did a quick search of the Carruthers et al consensus document. I didn't find anything about "difficulty perceiving cold and heat in a normal fashion". Below are the bits that I found about related words like "temperature", "hot"...

More #MEvårdsaknas media coverage :) This time on the local news on TV. Great stuff :thumbup: https://www.svtplay.se/video/24521489/lokala-nyheter-vasterbotten/svt-nyheter-vasterbotten-19-nov-07-05-1?start=auto

This is not about ME, but for those of you who might be interested in the bigger picture and the politics of the healthcare situation in Sweden. It's relevant to advocacy work and in order to understand the difference between ME healthcare in a primary care setting vs at the two ME specialist...

ETA transcription: "Dr Koroshetz, My name is Jennifer Spotila, and NIH is failing people with ME. Your letter to MEAction is a perfect example. You only offer excuses as to why you won't do more. But my friends are dying. They are dying from this disease, and they're dying from a lack of...

He's been sentenced to 1.5 years in prison for manslaughter :cry: They will appeal. https://www.svd.se/dom-meddelas-i-barmhartighetsdrap (Had a quick look but I wasn't able to find an article that isn't behind a paywall, sorry.)

SVT: Ingen ME-vård norr om Stockholm – trots löfte från Region Västerbotten https://www.svt.se/nyheter/lokalt/vasterbotten/ingen-me-vard-norr-om-stockholm-trots-lofte-fran-region-vasterbotten ETA:

10 044 now! Phenomenal! :party::balloons::thumbup: The petition will be presented to regional healthcare representatives in various parts of the country as well :) Fingers crossed for some good media coverage. Blog article written by Skiftet, the petition platform currently used by...

I'll admit I'm a bit surprised by your confidence in them... You are aware that Gunnar Olsson is a well-known BPS proponent, right? For example, his research into ACT for ME/CFS, aimed at getting participants to gradually increase their activity levels, address fear avoidance behaviours etc. In...

Thank you so much for sharing, Anna H! This study definitely deserves its own thread here on the forum, too. I do share your concerns :(

I wasn’t aware of ME (had no idea such a disease even existed) for the first 6 years or so after coming down with it, so I obviously didn’t know anything about concepts such as PEM etc. OI has been part of my PEM since the very beginning, but I obviously didn’t recognise it at the time. I used...