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:banghead::arghh::mad::cry::cry::cry:

I agree, super disappointing :( I've heard rumours (a researcher told a friend of mine) KI might be interested in doing another ACT for ME/CFS study too :( Testing this model seems to be part of other planned studies as well, for example this one: Craniocervical dysfunction, neuroinflammation...

https://openarchive.ki.se/xmlui/handle/10616/46839 Sickness & behavior in ME/CFS (Chronic Fatigue Syndrome) - Jonsjö, Martin 2019 (Thesis)

:cry:

Thread

Press release

https://opengov.360online.com/Meetings/vgregion/File/Details/2254234.PDF?fileName=Protokoll västra hälso- och sjukvårdsnämnden 2019-12-17&fileSize=1464054 I wrote a bit about it earlier here.

Region Västra Götaland, Sweden, are currently reviewing their healthcare for patients with ME. They ended their contract with the Gottfries Clinic (biomed) a few years ago. They currently have a contract with Smärthjälpen (BPS), a private pain clinic, which also includes pain and fibromyalgia...

Other S4ME threads about Martin Jonsjö's research: Sickness & behavior in ME/CFS (Chronic Fatigue Syndrome) - Jonsjö, Martin 2019 (Thesis) Discussing acceptance and commitment therapy in ME/CFS. Sweden: ACT for ME/CFS - an Open Case Trial The prevalence and impact of psychoneuroimmunological...

More from the ethical approval application: (Edited to remove duplicates, sorry!)

From the ethical approval application:

The role of low-grade inflammation for the progress of disease in patients with myalgic encephalomyelitis/chronic fatigue syndrome ME/CFS Anna Andreasson, Martin Jonsjö, Linda Holmström. Original title in Swedish (as stated in the ethical approval application): Betydelsen av låggradig...

Maybe they believe the hypothetically sensitised pain might explain the fatigue, PEM, OI and other symptoms?

#MEvårdsaknas: När vården gör de sjuka ännu sjukare… ("When healthcare makes the sick even sicker…") https://mevardsaknas.wordpress.com/2019/12/01/nar-varden-gor-de-sjuka-annu-sjukare/

Oh? Sorry, it was open access when I posted the link. Maybe they will reopen it later? ETA: It's still open access for me. I printed the article to pdf, would be happy to send a copy through PM, just let me know.

More about Nordingrå, this time an interview with the man himself (who was recently sentenced to 1,5 years in prison for helping his severely ill wife end her own life). Tidningen Ångermanland: Jag kunde inte ha agerat annorlunda ("I couldn't have done anything differently")...

Opinion piece in Tidningen Ångermanland, written by a pwME: Hjälp att dö – eller hjälp att leva för ME-patienter? ("Help to die - or help to live for ME patients?") https://etidning.allehanda.se/369/Tidningen-Angermanland/264233/2019-11-29/10768873/Hjalp-att-do-eller-hjalp-att-leva-for-ME-patienter

Here's a thread about another study by some of the same people: Craniocervical dysfunction, neuroinflammation and infection in ME/CFS ws healthy controls (planned study) Bragée Clinic, Sweden...