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  1. mango

    BPS attempts at psychologizing Long Covid

    According to posts on Twitter (I haven't been able to verify the source because of the paywall), Dr Judith Bruchfeld from the Covid clinic at Karolinska has commented on Kjöller's article:
  2. mango

    News from Scandinavia

    (I'm posting this as info, not a recommendation.) Bragée is arranging a series of educational webinars for physicians. It's free of charge and open to anyone. The first webinar in the series happened last week. A recording is available to watch on their website: Covid-19 och ME/CFS Tankar...
  3. mango

    BPS attempts at psychologizing Long Covid

    Paywalled editorial by infamous columnist/journalist Hanne Kjöller, in Sweden's largest morning paper (I can't believe they keep publishing her harmful rubbish :grumpy:). DN: Berättelsen om långtidscovid går inte ihop ("The story about long covid does not make sense")...
  4. mango

    The Mind-Body Syndrome Study (2019) Maroti et al

    Many many thanks, Woolie! I really value your thoughts, and I very much appreciate you taking the time to reply. Thank you so much :)
  5. mango

    Reality of ME. How would you get this across (briefly) using words or graphics?

    Ditto. And/or, like a never-ending flu + concussion.
  6. mango

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    It's not primarily about feelings though, is it? It's about survival, if you look at it a bit deeper. PwME are fighting for their lives. It's about a person of power exacerbating stigma and misinformation, which contributes to increased discrimination and ableism, which in turn makes it even...
  7. mango

    Book: When Force Meets Fate by Jamison Hill, published January 2021

    Oh, really? It only said pre-order when I checked earlier. I double-checked now and it still says pre-order? Also, I wasn't able to find any info about the e-book on that page, like what format, expected release date, whether it's downloadable or only to stream/read in app etc. Thank you so...
  8. mango

    Book: When Force Meets Fate by Jamison Hill, published January 2021

    Oh, contacting the publisher was a great idea! (I really should have thought of that...) Many many thanks for being so helpful :hug:
  9. mango

    Book: When Force Meets Fate by Jamison Hill, published January 2021

    Thank you so much, Helene! Very kind :) I'm in Sweden. (Adlibris unfortunately only sells hardback copies, doesn't deliver to your letterbox/doorstep, and I'm unable to pick up parcels from the post office. Book Depository don't sell e-books either, and I'm waiting to find out how their...
  10. mango

    Book: When Force Meets Fate by Jamison Hill, published January 2021

    Where did you get the e-book, please? I haven't found anywhere to buy it yet, none of the places where I usually buy my e-books has it. Ideally, I'd like to get it in epub format, downloadable to my laptop (because my e-reader doesn't have internet access), but I could convert a .mobi if...
  11. mango

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    On TV in Sweden this morning: TV4 Nyhetsmorgon: Covid-19 kan utlösa sjukdomen POTS: "Finns jättestor kunskapslucka" https://www.tv4.se/klipp/va/13318146/covid-19-kan-utlosa-sjukdomen-pots-finns-jattestor-kunskapslucka
  12. mango

    News from Scandinavia

    I posted an opinion piece in the long covid thread today, by a politician demanding better healthcare for people with long covid and ME. It also mentions the sad fact that Stora Sköndal's ME/CFS clinic is closing down. However, I felt this piece of information fit better in this thread: Dagens...
  13. mango

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Opinion piece by a politician in Dagens Medicin (website for healthcare professionals in Sweden), demanding better healthcare for people with long covid and ME. Dagens Medicin: ”Vården av långtidssjuka i covid måste säkerställas” En av två kliniker för ME/CFS lägger ned, trots att mycket tyder...
  14. mango

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    What a lovely little group of mutual support... A few months ago Henrik Vogt was promoting Minna Johansson's BMJ article about her own long covid experience, in Swedish long covid groups.
  15. mango

    News from Scandinavia

    Aftonbladet: ME-sjuka Jessika: Jag ligger i sängen 22 timmar om dygnet https://www.aftonbladet.se/nyheter/a/GaB8qJ/me-sjuka-jessika-jag-ligger-i-sangen-22-timmar-om-dygnet Google Translate, English
  16. mango

    The Mind-Body Syndrome Study (2019) Maroti et al

    Somebody who contacted Maroti, to ask him about the sources for that particular quote, shared the following list: Recommended general introductory reading: "Hidden from view" by Schubiner & Abbass. A selection of relevant research studies: EAET: Yarns, B. C., Lumley, M. A., Cassidy, J. T...
  17. mango

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    I couldn't help noticing that a certain somebody from Recovery Norway is sharing Garner's BMJ post in Swedish long covid groups on Facebook... :cautious::grumpy: ...and has reacted to his own post with a "love" emoji! o_O:rofl:
  18. mango

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Studio Ett: Fler högpresterande kvinnor långtidssjuka i covid https://sverigesradio.se/artikel/fler-hogpresterande-kvinnor-langtidssjuka-i-covid Interview, 11 minutes (audio, in Swedish). They talk about symptoms, how she was first dismissed and (falsely) diagnosed with anxiety, what the long...
  19. mango

    The Mind-Body Syndrome Study (2019) Maroti et al

    No, they don't cite any sources. I copied the text from this page: https://mbsstudien.se/ I, too, would like to know. I'm sure someone has already emailed the Ethical Review Authority by now, to request a copy of the ethical aproval application for this new study. Will share if/when I find out...
  20. mango

    The Mind-Body Syndrome Study (2019) Maroti et al

    As far as I can tell, the pilot study hasn't been published yet. I think there was a preprint, but it seems it has been withdrawn. https://psyarxiv.com/4wx5b/...
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