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Opinion piece today in one of the largest online newspapers. Björn Bragée of Bragée ME-center writes that ME "is not incurable, nor does it have a grief-stricken prognosis"... "At half-year follow-up, patients sometimes cancel because they are recoved, and every fifth younger patient can return...

I've never seen the name of the center mentioned, but I don't follow these people and I'm not in any of their FB groups. I haven't seen any source for the claimed recovery rates either. She seems to be quite active on Facebook, you could maybe ask her there? Here's a post that mentions the rehab...

The recent series of articles in Swedish media about suicides among pwME seems to have triggered an "interesting" reaction among some alternative/complementary/functional medicine practitioners and supporters, mould activists etc, of whom many have very loud voices on social media... In short...

https://www.aftonbladet.se/nyheter/a/wPLyA5/me-sjuke-basse-37-orkade-inte-leva-langre

Karin Alvtegen: Det pågår en vårdskandal ”Chockad att det kan gå till så här i Sverige” https://www.aftonbladet.se/nyheter/a/awBgla/karin-alvtegen-det-pagar-en-vardskandal

Opinion piece by the action network #116omdagen, criticising Försäkringskassan/the Swedish Social Insurance Agency. #116omdagen advocates for justice and fairness regarding social security payments, for pwME and many others. F-kassan har en vidrig syn på oss som är sjuka ("[The Social Insurance...

Press release by the anti-discrimination organisation Rättighetscentrum Västerbotten: Direct link to the full text document (pdf, Swedish): https://rattighetscentrum.se/vasterbotten/wp-content/uploads/2020/01/Information-R%C3%A4ttsprocess-RCV-RCN.pdf

I'm so so sorry you've been treated so appallingly :cry: What a nightmare, it makes my blood boil :mad: In Sweden there is Patientnämnden, and IVO (results vary, sometimes/often/? they just file it away in a dark place, but sometimes they actually investigate and get involved). There are also...

Unfortunately it seems some of the positive aspects of the ME situation in Sweden are repeatedly being overstated. It is true that there is a separate diagnostic code etc for burnout: However, how ME is viewed and treated in different parts of the country varies a lot, and also between...

https://mevardsaknas.wordpress.com/2020/01/15/region-norrbotten-stamd-for-diskriminering-av-me-sjuk-kvinna/ Original news article (audio, 2 minutes, in Swedish) here: "A visit to the dentist ends up in court - ME-sick woman in discrimination case"...

I agree.

This article is based on their ACT study (same ethical approval application/research plan from 2015). Some related S4ME threads here: The role of low-grade inflammation [...] in ME/CFS (planned study) Andreasson et al Discussing acceptance and commitment therapy in ME/CFS. Sweden: ACT for...

I would say no, for several reasons, and especially seeing that she seems to be tying it to problematic personality traits, psychological problems, unhelpful behaviours etc that she ascribes to PWME as a group. I keep getting the impression that she portrays ME/CFS in a minimising way, as if it...

I agree. I believe this is part of their efforts to try and subgroup patients by combining psychological and biological data; an intent they have previously stated in, for example, research plans submitted to the Ethical Review Authority. In their ACT research plan (2015) it says that the aim...

A letter from #MEvårdsaknas to those responsible for Christin's situation.

The journalist is looking for legal help for Christin