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  1. mango

    Coronavirus - worldwide spread and control

    You're not alone, I feel the same about the current situation in Sweden :( 253 people infected so far, and the numbers are quickly rising. Lots and lots of Swedish people went to Italy, Germany and Austria etc during the schools' so called "sports break" the last few weeks, and they have...
  2. mango

    News from Scandinavia

    Kränkt hos tandläkaren – nu får ME-sjuk kvinna ersättning https://sverigesradio.se/sida/artikel.aspx?programid=98&artikel=7417148
  3. mango

    Recommend soft safe earplugs, such as a soft medical grade silicone that immediately returns to its default manufactured shape [edited]

    I love Sleepsoft by Alpine :) They are reusable, very soft, very easy to use and clean, very effective and super comfortable. Their other model Worksafe is equally excellent, depending on what kind of noise your are looking to block out. However, they are silicon-free and do not have...
  4. mango

    Coronavirus - worldwide spread and control

    In Stockholm, Sweden, a taxi driver for Färdtjänst (the "mobility service"?) went to work despite being sick, drove customers around all day, and it has now been confirmed he has the corona virus :( https://www.expressen.se/nyheter/coronasmittad-chauffor-jobbade-nar-han-var-sjuk/ What's the...
  5. mango

    News from Scandinavia

    This isn't specifically about ME, but still relevant. An opinion piece about the privatisation of healthcare in Sweden, written by senior professors at Uppsala University and Karolinska Institutet. (Sven Britton is a member of the Swedish ME patient organisation's scientific advisory board...
  6. mango

    News from Scandinavia

    Trigger warning: suicide. Expressen: Diagnosen förstör Karins liv – Lotte blev helt frisk https://www.expressen.se/nyheter/krim/diagnosen-forstor-karins-liv-lotte-blev-helt-frisk/ Lotte is Norwegian, says that she was cured by the Lightning Process. Article links to and quotes Recovery...
  7. mango

    Anyone have trouble writing by hand?

    So true! I love Rhodia and Stálogy paper :) My favourite fountain pen for everyday use is Pilot Metropolitan. I use a converter, which makes the pen very easy to refill with bottled ink.
  8. mango

    Sweden: Seminar for doctors on how to distinguish ME from chronic fatigue/burnout

    Here's an example of what is being taught at these seminars:
  9. mango

    News from Scandinavia

    Dr Per Julin writes about the differences between ME and stress-induced fatigue/burnout ("utmattningssyndrom", literally "exhaustion syndrome", which is a separate diagnosis in Sweden), in the latest issue of the medical journal Medicinsk Tidskrift: Nyfiken på Trötthet...
  10. mango

    News from Scandinavia

    Opinion piece "A healthcare scandal" https://www.vn.se/article/en-vardskandal/
  11. mango

    Achieving symptom relief in patients with ME by targeting the neuro-immune interface and inducing disease tolerance (2020) Rodriguez et al

    I believe this is the same study, an earlier thread: New MRT Imaging Biomarkers and Treatment With Kinetic Oscillatory Stimulation (KOS) in Nasal Cavity for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)
  12. mango

    News from Scandinavia

    This was on Swedish TV earlier today (13 min): TV4 Malou Efter 10: Flera ME-sjuka har tagit sina liv - ”Det finns faktiskt mycket att göra” https://www.tv4.se/efter-tio/klipp/flera-me-sjuka-har-tagit-sina-liv-det-finns-faktiskt-mycket-att-g%C3%B6ra-12526936 (I'm too sick, haven't been able to...
  13. mango

    News from Scandinavia

    A Swedish woman with ME is fundraising to publish a book for children about ME. (I don't know enough about the book project or her as a writer to say whether I would recommend supporting it or not.) https://www.facebook.com/donate/506188676991375/1356556321181376/
  14. mango

    News from Scandinavia

    Two more articles in Aftonbladet today, with a comment from the Minister for Health and Social Affairs: Socialministern: “Vi ska ha en hälso- och sjukvård i Sverige efter behov” https://www.aftonbladet.se/tv/a/306876/socialministern-vi-ska-ha-en-halso-och-sjukvard-i-sverige-efter-beh ME-sjuka...
  15. mango

    News from Scandinavia

    This was on a Swedish TV this morning, 10 minutes long: TV4 Nyhetsmorgon: ME-sjuka Alexandra: ”Sjukdomen har tagit bort hela mitt liv” https://www.tv4.se/nyhetsmorgon/klipp/me-sjuka-alexandra-sjukdomen-har-tagit-bort-hela-mitt-liv-12526762 And this, drs Björn Bragée and Anna Lindquist (8 min)...
  16. mango

    News from Scandinavia

    I, too, would like to know. What if people cancel for a variety of completely different reasons? Maybe being too ill and/or not able to travel, maybe feeling it's not worth going back for whatever reason etc, who knows? Also, he doesn't seem to ever talk about remission or a possible...
  17. mango

    News from Scandinavia

    Great article in a women's magazine :) (Except that Björn Bragée is claiming that "10-20% recover" :grumpy:) https://www.amelia.se/halsa/halsa/alexandra-lever-med-me-det-ar-en-skitsjukdom-/
  18. mango

    News from Scandinavia

    I'm not sure what "simple solution" he's referring to,...
  19. mango

    News from Scandinavia

    Trigger warning: sectioning, death. Rest in peace, Lotta Wirström Fd Karlsson. In her last two Facebook posts she writes about being sectioned against her will after refusing to take a particular kind of anti-depressant she had been prescribed, because the anti-depressant made her severe ME...
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