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  1. mango

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Twitter is currently having technical issues
  2. mango

    OMF to launch clinical trials on Mestinon & Kynurenine, post-COVID19 study

    https://www.omf.ngo/2020/09/21/an-update-on-the-mestinon-clinical-trial/
  3. mango

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Yes, lots of longhaulers in Sweden are already having problems receiving disability from the social insurance agency :( It's the same problems very frequently experienced by pwME (including myself) since 2008. Sveriges Radio: Överläkare: Stoppa utförsäkring av covidsjuka...
  4. mango

    The biology of coronavirus COVID-19 - including research and treatments

    According to a study at Danderyd's hospital in Sweden, four out of five people keep their SARS-CoV-2 antibodies for at least four months. Danderyds Sjukhus: Fyra av fem behåller antikroppar mot SARS-CoV-2...
  5. mango

    US ME/CFS Clinician Coalition: Guideline - Diagnosing and Treating ME/CFS, 2019, and new website 2020

    I feel very strongly that it's massively important to highlight the risk that (severe or repeated) PEM might lead to a long-term or permanent worsening of the illness. It's the one thing I really really wish I had known from the very beginning. In my experience, PEM can definitely cause...
  6. mango

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Opinion piece written by a MD/researcher at Karolinska Institutet, published in the Swedish Medical Association's medical journal. Läkartidningen: Primärvårdens viktiga roll för förståelsen av covid-19-sekvele...
  7. mango

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Treatment advice from Sweden's Occupational Therapists, based on the British Royal College of Occupational Therapists' advice.
  8. mango

    News from Scandinavia

    Today, the Court of Appeal hearing begins about the high-profile case of Richard Lundgren who helped his seriously ill wife to die. The district court sentenced him to 1.5 years in prison for manslaughter, but the verdict was appealed by both sides. Now the defense lawyer Tomas Bodström wants...
  9. mango

    UK writer with ME Susanna Clarke - press articles

    Maggie Stiefvater, a bestselling contemporary YA fantasy writer, comments on the article (Twitter thread): ETA: Here's a blog article where Maggie writes about her own experiences as a writer with severe brain fog etc: https://maggiestiefvater.com/the-years-without-words/
  10. mango

    News from Scandinavia

    Allas: Sofie Holgersson lider av ME/CFS: ”Färgerna hjälper mig” https://www.allas.se/relationer/sofie-holgersson-lider-av-mecfs-fargerna-hjalper-mig/3263632 Google Translate, English
  11. mango

    The use of the labels ME, CFS, ME/CFS

    Can you please expand a bit on what you are basing this statement on? In what way do you feel that Sweden is taking ME seriously? Denmark? (I'm asking because I live in Sweden and I would definitely not agree that ME is taken seriously here, so I would be very interested in getting to know a...
  12. mango

    Coronavirus - worldwide spread and control

    The Public Health Agency of Sweden (FHM) published a report on covid-19 today, about their suggestions and recommendations for the next 12 months. What I found particularly interesting is that they are now finally starting to open up to the idea of maybe recommending face masks (but only in...
  13. mango

    Signs of Intracranial Hypertension, Hypermobility and Craniocervical Obstructions in patients with ME/CFS (Pre-print 2019/published 2020) Bragée et al

    Karolinska Institutet: Neck injuries and hypermobility are common among patients with ME/CFS Continue reading: https://news.ki.se/neck-injuries-and-hypermobility-are-common-among-patients-with-mecfs
  14. mango

    International: World Health Organization News (news relevant to ME/CFS, Long Covid and related conditions)

    Ever heard of "don’t count your chickens before they hatch"..?
  15. mango

    Coronavirus - worldwide spread and control

    I'm seeing a lot of comments on social media saying things like "the pandemic is over in Sweden". That is false. It is definitely not over. The numbers are increasing again/still in some parts of the country, even before the school year has begun, even before people have returned to work after...
  16. mango

    CBT for ME that is accepted by the community.

    I can't help wondering if maybe "designed solely for ME" is actually part of the problem? Why not offer people with ME the same regular kind of supportive CBT that is offered to people with for example MS, stroke, SLE/lupus and other severely disabling chronic illnesses? I'm curious, a question...
  17. mango

    Brain inflammation

    Many Swedish BPS proponents too, for example the Jonsjö/Olsson team with their ME = "sickness behaviour" hypothesis. Inflammation seems to be a major part of behavioural studies nowadays, for example in so called "psychoneuroimmunology", "psychoneuroendocrinology" etc. Especially in the...
  18. mango

    Coronavirus - worldwide spread and control

    There was a great Instagram live session with Matthew McConaughey and Dr Fauci tonight. About the pandemic, the science and the control measures, myths and what we can do and why it's important etc. It was recorded and is available to watch on IGTV now :) https://www.instagram.com/tv/CD2PYnvpNoc/
  19. mango

    Coronavirus - worldwide spread and control

    Finland is now recommending face masks in some districts where the numbers are currently rising (including Tornio-Kemi on the Swedish border), according to news articles today. Masks are recommended in the following situations, for people over the age of 15: On public transport In public...
  20. mango

    Coronavirus - worldwide spread and control

    Swedish journalist Emanuel Karlsten writes about the Swedish herd immunity approach, based on emails he has gotten access to through FOI requests. (Edited to add: What I find the most "interesting" about this, the main reason I wanted to share it, are the differences between what Tegnell and...
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