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    Michael Sharpe skewered by @JohntheJack on Twitter

    But when you consider the amount paid to those in ESA & PIP and what claimants have to go through when being assessed it's a huge sum. I'm sure the ME biobank could make good use of it.
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    David Tuller's new crowdfunding campaign (April 1, 2018)

    It's a bit unfortunate that there have been a few fundraising campaigns so close together. If they were spread out a bit more then I could manage to give a bit more. All such important causes!
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    Are probiotic treatments useful on fibromyalgia syndrome or chronic fatigue syndrome patients? A systematic review - Roman P +

    Well, all I can say is when I try probiotics I end up doubled over with abdominal paim. Not for me, thanks!
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    Glenn Doherty with "Sick" - A short story about ME

    I've just bought it too. Will read when I can.
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    The “scandal” of the PACE trial for CFS/ME, BLB Solicitors

    Proof it's the BPS mob driving researchers out of the field (or this country at least) and not patients.
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    World ME Alliance, was previously IAFME: International Alliance for ME

    I have to admit I'm worried. Have AfME raised or publicised any of this on their forums or social media? It seems they're very quick to get any media attention going, so why be so quiet about this? This has the potential to cause as much, if not more, harms than the PACE trial. Even if I...
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    A couple-based psychological intervention for chronic fatigue syndrome [In progress, April 2018]

    This is what makes me wonder: there is a huge demand for more services and better treatments and care for people with serious mental health issues. There is a huge amount of good that could be done instead of poaching illnesses from other disciplines, purely (or so it often seems) to inflict the...
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    David Tuller - Trial By Error: Goodbye, Australia; and Two Updates

    Angela Kennedy is a sociologist. I believe her daughter has ME. Here's a review of her book "Authors of Our Own Misfortune" : http://blogs.lse.ac.uk/lsereviewofbooks/2013/06/11/book-review-authors-of-our-own-misfortune/ Edited to add tag @Binkie4
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    Wales Online: This woman from Cardiff has been trapped in her bed for more than ten years

    I see the little info video clip in the article claims most people get better over time.
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    Article: ME patients misunderstand, Andresen, 2018

    Stress means very different things to different people in my view. Some get stressed when they have too much to do and that's when I used to thrive. Too little stress & I get bored. I find boredom incredibly stressful. I was on a retreat a few years ago. One afternoon there was a art session...
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    World ME Alliance, was previously IAFME: International Alliance for ME

    I'm viewing it as alarming, until there is solid evidence to the contrary.
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    BABCP Band 'Bedlam' (featuring Trudie Chalder) gig

    That is exactly why I thought it in such poor taste. How can anybody, let alone people who are supposed to have an understanding of and treat mental health conditions, think that is in any way clever or amusing? Those poor souls suffered dreadfully. Then they were tortured and abused by way of...
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    Petition: Review treatment of people with ME in Scotland

    Good to see you here @Emsho. Great work on the video & campaign :thumbup:
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    Esther Crawley's presentations (excluding the 2017 TEDx talk)

    I'm really hoping you're keeping that notebook under lock and key @Jonathan Edwards! It sounds too valuable to lose!
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    A Competitive UK Research Strategy

    I think Dr Hutchinson and team at the University of Leicester have been researching spatial vision.
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    Blog: Hysteria by Different Names: Gender Bias in Patient Care, Gina McGalliard

    Of course we're all aware of the stigma and lack of treatment for the more disabling conditions, but the type of attitudes discussed also have huge financial implications for women. I mean the luckier ones who manage to carry on having some sort of life. There will be so many cases where women...
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    BABCP Band 'Bedlam' (featuring Trudie Chalder) gig

    Is it just me or is choosing the name "Bedlam" in extraordinarily poor taste?
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    (Not a recommendation) Bath University, Volunteer for research investigating Chronic Fatigue Syndrome

    Corrigendum: 1. An error to be corrected, especially a printer's error. 2. corrigenda A list of errors in a book along with theircorrections. from: https://www.thefreedictionary.com/corrigendum Well, there's a new one....
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    inTune Choir is Going Blue for ME Awareness Day at Wheal Martyn, St Austell, Cornwall 3pm on Saturday May 12th

    I'll be with you all in spirit. I hope it all goes well. Please pass my thanks to your choir @Liv aka Mrs Sowester. An event like this takes a lot of work. Thank you! :) :party:
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    David Tuller's new crowdfunding campaign (April 1, 2018)

    Perhaps, he is just so used to being around those who hold the same views and beliefs he has become arrogant enough to think that everyone else will just believe what he says?
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