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Was searching for something else and came across this downloadable leaflet from the MEA @Inara, don't known if it adds any other information that might help you. I think it's £0.83 to download: http://www.meassociation.org.uk/shop/medical-management-leaflets/lyricapregabalin-for-pain-relief/

For those interested in the ME Association 's advice they do this downloadable information leaflet, it's £0.83 for UK and Europe and £1 for the rest of the world. http://www.meassociation.org.uk/shop/medical-management-leaflets/fatty-acids/ It was possible to buy Efamarine from the MEA at...

Yes. I still take the combination I was advised to. Edited - I was initially told to take Efamol's Efamarine - 3 caps twice per day. Last year there was a supply issue and so I tried to approximate the dose as best I could by taking a combination of Efamol Brain and Efamol Woman capsules...

When I was diagnosed 20 years or so ago, my consultant did a range of blood tests. In those days I was too naive to ask for the results so I don't have a list of what exactly we tested and what "normal" ranges would be. I was told I was low in a range of things including omega 3 and 6. From...

Not just Jon Stone @Webdog. If his colleague is the same Carson I've heard of he's BPS through and through.

I wasn't comparing us to elderly dogs @Snowdrop. My point was more that I find it weird that a vet, who treats multiple species, is aware of and prepared to use products such as L - carnitine and NAC to improve the quality of life for their patients, whereas many GPs probably don't even know...

My elderly dog is sleeping more and much less active and alert so I was very interested when my vet prescribed a new supplement for her. The ingredient list piqued my interest even more. It includes: DHA/EPA N-Acetyl cystine Acetyl L - carnitine CoQ10 Fascinating that my vet should be...

Really? Depression is one of the symptoms of hypothyroidism. If I take too much thyroid meds then I get some symptoms that could be confused with anxiety such as racing heartbeat & palpitations. Similarly, someone I know with an overactive thyroid gets similar symptoms if she forgets her meds...

Nice work @Bill. :thumbup: It does no harm for our MPs to realize that, while they may deal with one individual, hundreds or more people worldwide are interested, see and take note of how the individual was treated.

Great work @Binkie4 :thumbup:. What a lovely reply from Nicky Morgan.

I have removed a couple of ticks from my dog recently. The first one didn't come out cleanly and she's off to the vets to check out an inflamed spot near the bite site. I got a little tool and used it to remove the second and it came out nice and cleanly. Makes my skin crawl.... I wish there...

Perhaps an open letter or communication from us (S4ME) to each of the members an and supporting cast might be in order? What do you think @Andy? Outlining our concerns and asking for further information including a contact/liaison for the patient community.

...and exactly where they stand on the continuing recommendations re CBT (PACE style) and GET.

I think it's unbelievably cruel not to allow the sick, dying or vulnerable to express and discuss how they really feel. I had an elderly friend, she had two daughters but had already buried her husband, a son and most of her friends. She was in reasonable health as long as she didn't do much...

Perhaps instead of " some of the country's leading ME researchers and clinicians" that should read "some of the country's most militant ME researchers and clinicians"

Yep! They started and run the London conference every year. They are research oriented. Here's a link: http://www.investinme.org/landerP5.shtml

Here, in the UK, you can sign up for amazon smile. You then access you amazon account via amazon smile and checkout in the normal way. I haven't checked the full list of who you can donate to but Invest in ME is one of them.

As you say @MsUnderstood some good, some not so good. It never seems to occur to them that while they busily push the BPS narrative that doesn't help and can cause real harm, they may be driving some patients, who experience depression because of their ME, away. I could understand an ME...

A word of warning - I know someone with balance issues who was prescribed this to help them come off the booze and they ended up with a life threatening head injury thanks to a couple of falls. Here is a rather patronizing leaflet (pdf) brought to you by the Royal College of Psychs...

Blimey.... I've often heard the old one in four statistic re mental health. Never heard it conflate with neuro conditions before. :banghead::banghead::banghead::banghead::banghead: