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It certainly a good idea to get it checked out by a doctor @Inara. I think this is especially true for any symptoms that are new to you or symptoms that suddenly become worse.

I don't know if this is the same thing but it sounds like something I experience if I have repeatedly overdone it without resting up and allowing myself to recover properly. I may seem to recover after a few hours in a darkened room with absolutely no stimulus but I will continue to be very...

In the UK some of us do manage to get benefits. Some of us don't so e only getting after going to tribunals ( a bit like going to court), but it is always a battle. The arguments that have been used historically to deny benefits here were developed by the BPSers. So it may well be that even...

The thing is I'm not sure you can accurately compare the costs because the cost of treating cancer and MS involve actually treating cancer and MS and presumably improving and extending the lives of patients. The cost of treating ME (in the UK) doesn't include treating or improving lives...

I think the lack of outrage is because of ignorance. I think if people realized just how prevalent it is and how severe and that it could happen to them then they would be angry. You are right @Inara - this change must be brought about by many. I think this can be done - we just have to find...

True, it can be changed though, albeit slowly. I'm thinking back to attitudes to being gay in the 80s, to people who contracted HIV, racism.... Now those prejudices do, sadly, still exist, but they are not considered to be socially acceptable anymore.

And having failed to prove it they should have reassessed and moved on. I begin to wonder exactly who are the subjects of their experiments: the patient group: but as @Indigophoton points out they have already disproved their own theories. the establishment: just how far can they be pushed...

Well I looked up BM BCh & found: Bachelor of Medicine, Bachelor of Surgery, or in Latin: Medicinae Baccalaureus, Baccalaureus Chirurgiae (abbreviated in many ways, e.g. MBBS, MB ChB, MB BCh, MB BChir (Cantab), BM BCh (Oxon), BMBS), are the two first professional degrees in medicine and surgery...

Yes. A consultant paediatrician in the UK means a medical doctor who specializes in illnesses affecting children. Patients are usually referred to specialists by GPs in the UK (the US equivalent of a GP is a Primary Care Physician I think). ETA crossed post with Trish

I think she has the talent of a politician. Say something that sounds like it makes sense but all the while meaning something rather different. ETA ...but actions do speak louder than words.

A good question @JamBob . Ritux aside, from Jo Cambridge's presentation I understood they have found a problem with B cells - specifically CD21 & CD24 molecules. The observations made by the UCL team may indicate some mitochondrial problem. I don't really understand the science. So...

My take on it (what I hope it means) is that although Ritux itself is not going to be "The Cure", the team will have made some useful discoveries along the way that could provide useful information to J Cambridge and others. This information might provide clues as to where to look next and...

The presentation itself is about 26 minutes and then there is discussion.

And I respect him as much, if not more, for coming clean and admitting it than if the mistake hadn't been made in the first place.

How unbelievably cruel! If it were me I would rather no counsellor at all than a counsellor taking up my resources deliberately not giving me the help I need. If they're not going to help folk come to terms with death and dying, why are they there at all? Sounds to me like they should be fired.

For the 1st decade it was relapsing remitting but then it seemed to change to primary progressive.

yep - pins and needles - like you I don't get that so much these days. I still occasionally get either numb or burning patches, though not very often. Can happen anywhere, but most often on the thighs. It's amazing how many symptoms I forget about completely 'till someone else mentions 'em &...

Oooh the face twitching. I really hate that. I get it around the eye or at the side of my mouth and it is so annoying! Also I notice that when I overdo it there seems to be an order to things that go wrong: so long before any "fatigue" might set in my fine motor skills go and judgement when...

Normally, if I pace myself properly I'm fine but... Caffeine, epinephrine & related drugs all trigger the shakes. Including local dental anaesthetic injections. If I overdo things then I will get the shakes quite badly. Before I learned to pace myself I even had problems eating & using a...

Well they do say: Bolding mine - what does that mean? A) the patient says "Ouch" when I press this area or B) in answer to the physician's questions the patient clearly exhibits illness behaviour Very vague. Which is why we need adherence to properly defined criteria. I suspect it...