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    Low temperature

    Morning! I'm not the only insomniac tonight then @Wonko :(, It sounds like maybe something that should be checked. Hypothyroidism can cause low temperatures. My temperature is generally slightly low even on medication. I don't bother checking my temp regularly anymore but when I suddenly...
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    Pain Relief w/o Narcotics

    Like most other people I have used paracetamol and ibuprofen individually. Occasionally, when they weren't enough on their own I was told to use both together and they were pretty effective. However for certain types of pain - migraines for example they just don't work even taken together...
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    Pain poll

    Of course there's also the intermittent sharp, stabbing eye pain and stabbing ear pain too....(both been checked).
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    Let's talk wheelchairs and mobility scooters

    @Allele - no idea about wheelchairs I'm afraid. I'm sure others will be able to advise. However, if you can't put you legs up in a wheelchair then wearing flight socks while in it might help. If I have to go out I find them quite helpful especially when I am being driven for any length of...
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    Contribution to science of Regius Professor Sir Simon Wessely: a thirty year retrospective

    And a number of patients believe that those doctors' opinions are contingent on continued career progression, funding and influence given as a reward by the likes of govt depts and insurance companies. Bolding in the quote is mine.
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    Buzzfeed News - A Controversial Therapy For ME Has Led To Claims Of Death Threats, Harassment, And Pseudoscience

    .... & failed so spectacularly that one could be forgiven for wondering if it had failed at all or if there were ulterior motives at work.....
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    Pain poll

    From my experience pain & ME is a complex thing. I get all the types of pain listed but not all of the time .....apart from the general background type and the random pain. The others listed are PEM related for me apart from the skin pain. However, in my personal experience, ME fluctuates...
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    Significance of unrefreshing sleep in IOM diagnostic guidelines

    @Subtropical Island - my tuppence worth is that just because you have managed some control over one symptom does not mean you are cured or no longer have ME. You are simply symptom managing, which is all we can do for now. In my own case, I was diagnosed with Hashimotos. I have had someone...
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    (Not a recommendation) Alastair Miller on CFS

    Wherever it came from this document makes a point of mentioning Alistair Millar's role in AfME. It would be interesting to hear their opinion on this document and whether they support the claims made in it.
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    Trial By Error: A Sneak Preview of Next Week’s Post 27 DECEMBER 2017

    I don't know any studies into this @Barry . I can say that, in the early days, at the stage when I could no longer pretend to myself that how I felt was "normal" I relied on medications like paracetamol to try to control pain and prop me up. It was only when I realised that these meds weren't...
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    Trial By Error: A Sneak Preview of Next Week’s Post 27 DECEMBER 2017

    Someone with a severe cold recently came into the area where the Invisible Man works. They coughed, sneezed & spluttered all over the place. Virtually everyone there asked them to go home. Nope. Sat there doing naff all and infecting everyone. They had promised a manager they would cover a...
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    Trial By Error: A Sneak Preview of Next Week’s Post 27 DECEMBER 2017

    When you think of all the trouble they have freeing up hospital beds with people who do not actually need to be in hospital but cannot be at home alone, then convalescent homes seem like a good idea. This rush back into activity is a plague of the modern world as far as I am concerned. Those...
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    (Not a recommendation) Alastair Miller on CFS

    Seeing the word column makes me wonder if this was written for some magazine or journal or something ...
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    (Not a recommendation) Alastair Miller on CFS

    This again. All illness will have a psychological component from cancer to a toothache. However treating an illness as primarily psych is the issue. Try treating cancer (or a toothache ) for that matter with the toxic brand of CBT designed with the CFS patient in mind.
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    (Not a recommendation) Alastair Miller on CFS

    Hmmmm... No, I beg to differ. They are not effective. Can you supply details - actual figures of people who have recovered sufficiently to return to and remain in school of at work long term. Again - we differ: the people who are not being helped by your service or who have been harmed will...
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    Prognosis of ME/CFS – by David S. Bell, MD

    I know what you mean @Dolphin . I know someone who asks me questions about what's going on with regard to research and advocacy etc. She's fairly high functioning and while she is still most definitely ill, she does not actually seem to realize how comparatively well she is. She always says...
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    Films

    One of my favourite films (& not at all recent) is Amelie. It's a little quirky and Amelie gets annoyed with one of her neighbours who is just horrible to his assistant in his greengrocer shop. The assistant is a little different & his boss calls his names and verbally abuses him all the time...
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    Appointment with a neurologist

    ....& if you found & took one it would only tell how how you are now. Not how you were years ago.
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