Search results

That's beautiful @Robert 1973. I really like your voice.

I wouldn't describe mine as warm brain but.... Like you, for a long time I have tended to feel feverish, but with a slightly low temp. I also have Hashimoto's though. When I am suffering from PEM, or after even relatively short and light cognitive effort, I also experience peculiar sensations...

Bolding mine. I recently discovered that when I am not taking enough thyroxin my HR actually goes very low. So not only could the patient be experiencing something else which raises their HR, they could also be suffering from something else that masks it.

Visual processing, spatial awareness and short term verbal memory are all impaired for me. There is also a very significant dip when experiencing PEM.

As long as it's not used restrictively in diagnosing PEM - for all we know some people's HR rate doesn't go up. But then the chances are nobody experiences all recognized symptoms anyway.I Also I would not want people to feel obliged to buy HR monitors to test unless they were planning on and...

Now, who was it that suggested Dr Keith Geraghty suffered from ME himself and therefore shouldn't be commenting on others research and generally implying a conflict of interest?I Perhaps we could forward them a copy of this article? :whistle:

Hi @Medfeb. Because of our experiences here in the UK some of us are wary of having our words twisted, interpreted or misinterpreted. In questionnaires here questions have been worded to elicit responses that can then be interpreted in a certain way i.e. to indicate depression or anxiety...

The similarity between playground bullying and how ME/CFS patients are treated has always struck me. The bully (in our case BPSers) strikes to suit their own ends and others follow because they don't want to become the next target. People look at us and, I think, some small part of them is...

My understanding is that this thread is to do with how PEM is defined affecting all research which will be carried out by NIH/CDC. They aim to use PEM as a core diagnostic criteria and therefore we are questioning their definition of PEM in relation to how it may be used to identify those...

I understand the need to specify the variability in triggering PEM - may occur during the trigger event or up to 3 days later. Otherwise incidences of PEM may be missed. I wonder if it is necessary, within the scope of this exercise (pardon the wording) to specify the duration, other than to...

I am saying that compound PEM or multiple concurrent episodes of PEM: Exacerbated existing symptoms May cause dormant symptoms to flare And reduces the energy threshold that triggers PEM It can also lengthen the recovery from PEM This is my experience of it at least. I appreciate others may...

I think the one thing we can all agree on is that we are all rather different I, personally, think PEM can last for longer than 2 weeks. I agree that PEM and relapses are different, though they may physically feel very similar. However, I also believe that compound PEM as I mentioned above...

Thanks @Arnie Pye ! My posts are full of typos at the moment - I got a new tablet as a present and the bl@@dy thing does the weirdest autocorrects. I'm so busy correcting those I miss my own mistakes.

Just to say: I have Hashimoto's and am one of the lucky ones for whom levothyroxine works. Levothyronine (T3) makes me feel rather ill. It is a bit of a sod but for some of us management is less of a sod than others. Mind you, that also depends on you GP......:( One step at a time. I'll be...

Good luck @ Wonko!

No, but I think PEM can easily slide into relapse. ETA unmanaged PEM can slide into relapse is what I meant.

Now the handy thing about having patients inflict GET on themselves is that when the day comes and we can prove they have actually hurt people with GET, there is no therapist or unit to blame. I have no doubt they will try to claim it's the patients own fault for not doing it right somehow.

:thumbup: Also what I call compound PEM - kinda like compound interest: Day1 do something that will trigger PEM and don't realize it Day 2 so pleased you got away with yesterday - maybe I could achieve a little extra task today as well Day 3 still ok - on a roll here Day 4 - 3 days past...

:hug: @Squeezy

It is one thing to avoid labelling a person - when I was younger this term meant (still may mean) applying a label which might be seen as derogatory or stereotyping and would be likely to lead to the person being discriminated against. It's altogether another denying them of the correct...