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    "Exquisite sensitivity to medication"

    I think predisposition is at play in my case too. I've had lots of mild allergies since I was a very young child. Food, soaps, shampoos etc. I didnt really need much by way of medicine so I don't know if I reacted before. I do know that some medicines I did take, I suddenly stopped being...
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    Is the NIH/CDC going to use the right PEM definition for all their future research? Do patients need to act? Deadline 31 Jan

    Sometimes yes, sometimes no. For me there are phases to this condition that are separate to PEM. There a good phase (a rare thing now). When it seems quite stable and I can enjoy small yoga type exercise & very gentle walks. There is the downward phase where no matter what I do my condition...
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    "Exquisite sensitivity to medication"

    I only seem hyper sensitive to certain meds. Others, I seem to react as normal. I am really, really sensitive to SSRIs and amitriptyline. Even in the tiniest dose. I cannot handle anything with adrenaline or adrenaline based compounds such as epinephrine at all. Funny you mention beta...
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    Feedback from Stakeholder Engagement Workshop for the NICE guidelines on ME, Jan 2018

    :thumbup: :thumbup: :thumbup: :thumbup: There is no reason why the medical profession can't be truthful in a sensitive manner. When I was diagnosed I had a very demanding job with sometimes long and unpredictable hours. I was the main breadwinner. For me, managing my expectations would...
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    Are objective outcomes of cognitive function possible?

    Things that are likely to make it worse or trigger more easily for me: Standing or sitting in a chair with with my feet in the floor -feet raised or lying down is much better High temperatures Background noise - especially people talking PEM Allowing myself to get too hungry Not drinking...
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    Overview of different health & welfare systems

    The UK System Healthcare UK healthcare is currently provided free of charge at point of service by the National Health Service (NHS). It is paid for through compulsory contributions deducted directly from wages. The doctor who handles routine health care is called a General Practitioner...
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    Overview of different health & welfare systems

    @MErmaid & I recently confused each other talking at cross purposes because the US medical system is so different to the UK system. So we decided to create this thread to provide a simplified overview of our own health and welfare systems and the terms & acronyms frequently used when we talk...
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    Are objective outcomes of cognitive function possible?

    Dunno he can be a grumpy git...:) But, to be fair, he has had 20 years to get used to it. It took him a long time to understand that how he handles it can make a big difference. Becoming annoyed with me when I'm like that only makes it worse. It's in his own best interest too.
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    IiME letter to Mark Baker (NICE) re: CBT & GET as recommended treatments

    I think this is where I have been confused as I haven't considered Oxford as a superset but as a large, loosely defined set where there are some common members with other separate sets such as ME. As far as I can tell I would have been excluded from Oxford, even though there is little doubt...
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    IiME letter to Mark Baker (NICE) re: CBT & GET as recommended treatments

    We both got there in the end @Sly Saint ! Thank you! :)
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    IiME letter to Mark Baker (NICE) re: CBT & GET as recommended treatments

    Wracking both brain cells... I'm sure it's on s4me somewhere already. The quote might be to do with outcome thresholds rather than criteria tho'
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    IiME letter to Mark Baker (NICE) re: CBT & GET as recommended treatments

    Yeah. I remember Wessely saying somewhere that they had to broaden the scope otherwise no one would have recovered. But was that about criteria of about lowering thresholds. Your post is ringing bells,but I can't quite remember either :banghead:
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    IiME letter to Mark Baker (NICE) re: CBT & GET as recommended treatments

    I don't understand this.... Humans are a large group. Men, women and children are subsets. Are you saying that because men, women and children are part of the human population then all attributes of humans apply or should be assumed to apply because they are all human? This seems wrong to...
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    IiME letter to Mark Baker (NICE) re: CBT & GET as recommended treatments

    Thanks @ Graham. I've been mulling this over and struggling. I see what @Jonathan Edwards is saying. From the sound of things using wide criteria is done elsewhere in research. It doesn't in itself necessarily cause problems. The problems arise in the application - ignoring and failing do...
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    IiME letter to Mark Baker (NICE) re: CBT & GET as recommended treatments

    Here a link to download the PDF: http://www.ncf-net.org/library/Reporting of Harms.pdf ETA : Is this in our library @Woolie ?
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    IiME letter to Mark Baker (NICE) re: CBT & GET as recommended treatments

    I see what you're saying @Jonathan Edwards but....common sense approaches.... I don't see that will be any different what we have now - until we can demonstrate that exertion (even extreme!y mild exertion) in some cases is enough to worsen the condition.
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