Search results

I hope you're right @Adrian .... I'm not sure lack of evidence will stop 'em if they think they can get away with it. We will need to watch for slyly crafted language that is open to interpretation ....

This is what worries me about the NICE guideline review. It could so easily go the wrong way.....

Maybe I'm being pedantic here but maybe supposed to take effect is not the same as you will feel the effect yet? Unless it's causing problems it might be worth carrying on with it for another 2 or 3 days.

The term duty of care springs to mind....or doesn't that apply to physios? Or does it just not apply to researchers the PACE trial? Or both?I At the very least you'd expect a referral to be seen by a doctor before continuing!

I've not read the whole thing yet but this jumped out: from the downloaded document othersideofvenus said: If you don't ask questions designed to pick up PEM, you won't find PEM.

This is my experience too. At least some of the memories are clearly there for me as they do come back. But at the time I need 'em I'm either desperately searching a blank space in my mind, or I'm not aware they are missing at all.

I know of one case where someone had the local authority come into their home and remove all the aids that she had previously been assessed as needing. Why? They were suddenly advised that the use of aids was not advised for people with ME. By providing aids they were contributing to her...

I had a relative in hospital and she was passed from the original OT (really helpful and understanding ) to a different OT (who wasn't really interested at all) on discharge from hospital.

Yep, but will be unspecified in the stats.

A very good one. I read an article in a magazine about a guy who had breast cancer. How the assumptions made about all people with breast cancer being women affected him and his treatment. I read it in a magazine in a waiting room some where and it really stuck with me in a " Wow! Never...

I didn't specify (cause I'm an awkward cuss) but I can confirm I am female so: Male: 179 Female: 332 Unspecified: 139 I daresay that doesn't really help tho' !

That would be the it's not what you know, it's who you know system.

Yes it would but I suspect that is why the BPSers have been so very deliberately slippery with terminology. To make their brand of treatment more acceptable. I also suspect that is partly down to the very good intentions of some therapists at some CFS clinics. They deliver the appropriate...

The people I know who have had NHS CBT at a CFS service and found it helpful, when I enquire further, all seemed to receive support with coming to terms with being ill and adjusting to it. Not the PACE version of CBT at all.

The problem with letting this situation remain, as I see it, is that some of them are actually implementing it as per PACE, and push on with it even when they see this approach is not right for the patient.I How does the patient know which clinic is which? Even if we did most of us can't...

Errrr...no, Mark Baker We have people, especially in the South West, who are being pushed by their GPs into CFS clinics against their will. They are literally blackmailing the patient - if you want to continue with medication for another co morbid condition you will have to be reviewed by the...

The one thing I can be sure of....if it's supposed to make me sleep I'll be wide awake the whole flippin night. :(

I think it's pretty old too. However, the fact that it's still up there indicates that they believe the information for is still current. That or they are not keeping their web site updated - which seems unlikely. Eta - crossed post with @Trish . She types quick!

Yeah. Those dental injections with adrenaline *shudders*. The ones without so much better. Especially on top of the effort of actually getting to the dentists and then home again.

Can I respectfully suggest a title amendment @Valentijn ? Proposed subtitle: How to Paternalistically Manipulate Your Patients for Their Your Own Good