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Yep. With zero scientific evidence - here's what I think: 1. As the body starts digest the insulin levels rise. There is a slight delay where blood sugar levels rise before insulin levels rise. If the meal is mainly comprised of simple carbs the insulin spike peaks after the sugar levels...

Disappointing but let's not take that away from what a massive achievement it was to get the film shortlisted. Well done and thanks to Jen and everyone involved! :thumbup:

Hmmm....may be those of us lucky enough to have even a tiny view of something we like, or helps us to keep going could share them? Not quite the view from my bed.... More the view from my bedroom/living room/room of choice for those who are able to access multiple rooms window type of thing?

Ain't that the truth....

I wouldn't rate fatigue as a primary symptom anyway. I feel fatigued when I need to up my thyroid meds or when I'm anaemic. Otherwise I feel like I've been poisoned, not fatigue. There are other symptoms that are more significant to me. Personally, while I find HR monitoring is useful, I...

Yeah. That's what I'm thinking. For me the melatonin is helpful in nudging me back to some sort of a pattern, but if life throws a spanner in the works just as I've come off it then I'm scuppered. For example I just came off melatonin before Christmas and then had friends phone me...

To be honest not only are some people so uncritical, they will actively seek it out. I found you guys in the other forum after I was absolutely sickened by some exchanges I read on an ME Facebook site. Somebody started off going on about how therapy was helping them (fair enough), they...

Yes. 72 hours after one discrete incident of exertion/activity. Eta - for me PEM can sometimes start on day 3 after the activity.

@Valentijn mentioned N acetyl carnitine elsewhere so I might give that a go in the near future.

I use melatonin (private prescription). It's does help my sleep but I was advised only to use up to 3 weeks at a time or it'll stop working. It does help me with sleep, in that I seem to sleep more deeply & maybe for a bit longer. I can't say the extra sleep makes me feel any better :(. I am...

The cruelty and abuse is sickening. The fact that is is allegedly being carried out for the so called benefit of the victim just adds to the injustice. I really, really hope the individuals responsible are called to account sooner rather than later and that their friends, families and...

Some patients will go because they're newly sick and have no clue what's going on yet. Others will go, because their GPs threaten 'em with withdrawal of meds for other things if they don't go. Or threaten to drop them from their lists. Physios and OTs happily work for the likes of ATOS...

:hug: They do love to kick a person when they're down.....

Maybe I'm misreading/misunderstanding. I can suffer from both immediate and delayed onset PEM depending on whether I am in a good phase of bad phase of the illness. Also delayed onset is variable for me. I'm not really sure of all the factors that cause it to vary but if for example I both...

Enviromental factors: heat, sensory stimulation (noise, lots of fast moving visual info such as travelling in a car) are also common triggers. In my own case environmental factors are far more likely to trigger PEM than emotional one, but that may not be true for others.

I reckon there are two reasons: 1. Unless it affects them, or someone close to them, they have no interest. For Douglas Adams fans this would be the equivalent to enclosing it in an SEP field. 2. They see the problem quite clearly. However, it is in their own best interests to ignore the...

. Ah yes, but not when treatments are for the mentally ill. That's different .... Nobody seems to give a damn. Eta which is why they are trying to push more patients into this category while wringing their hands and pretending that they aren't responsible for stigmatizing the mentally ill...

Yep. Me too. I used to exercise regularly, it was a great way of destressing from my job. If I stopped for a few weeks and had to restart it was very hard to get back in to it, stiff, achy muscles but it was NOTHING like PEM. PEM is like nothing I experienced before I became ill. In fact...

I have read it differently. The guidelines /recommendations are issued by And the Research Committee acknowledge a lack of trained physicians. The JMEA are saying that the guidelines aren't good enough and that

What a disgusting human being.