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In what way? If a users activity drops, or some sort of logging system?

I agree...but, for me at any rate, pushing cognitively (by taking a test) when I am in PEM, would be as problematic as physical exertion when in PEM. Cognitive dysfunction is as, if not more, disabling for me as physical or bodily symptoms and will also trigger the physical type PEM. I don't...

Bolding mine: - first read that as discriminating AGAINST subjects......

Yeah, when I was buying mine they explained it. You've got your memory foam and you've got the backing. As far as I can recall, when I bought mine there were three levels. The more memory foam, the softer.....I think. I know the hardest was just a bit too hard for me - I was just too sore...

I expect barely trained CBT therapists in blue cardigans are cheaper....

I'm bl@@dy furious @Sue Klaus .... However in the UK (& possibly other parts of the world?) UNUM isn't as familiar a name as in the US. I am only familiar with the name because of an acquaintance. Some people in the UK might be covered by permanent health insurance policies provided by UNUM...

Yeah, this can be an issue. They do come in different thickness levels and the thickness affects how firm the memory foam mattress is.

Are there any real world, objective outcomes at all? What about return to work/study figures? How many people no longer needed/qualified for benefits?

I use a tempur mattress. It's not quite the thickest -one down from that, I think. It made a difference to me in comfort, but as @Liv aka Mrs Sowester says, if have night sweats etc.....not so great. On the other hand, if you feel the cold, it's quite good. Snuggly.

I actually know someone who was involved with some of the high up talks about ME/CFS back in the day. They removed themselves from the situation because the direction things were taking became very obvious. This person felt their voice was largely being ignored and didn't want their name used...

True, but I think attitudes like this that go unchallenged become entrenched. I doubt they've changed much at all. Of course, patients aren't qualified to challenge it and the ones that do are just demonstrating that they are the most in need of thought & behaviour modification.

The link isn't working at the moment @chrisb :(

Is it just me or does that sound like a threat? :eek:

Family court here is different @ Inara. There's how it should work and how it actually does. Systems originally put in place to protect the child twisted against the family. A friend had a relative (a highly qualified nurse) who went through almost 2 years of hell because of an unexplained...

Sad to say I am neither shocked nor surprised. This is exactly what a great many of them really do think, in my experience and opinion.

Also: I dont know the Scottish system, but in England, if it goes to family court stage, the proceedings happen behind closed doors. Sometimes parents aren't even made aware of all of the allegations against them. Sometimes they aren't given the chance to even give their side of the story...

I dunno if it's helpful to throw this into the mix but: Up to 10 yeare from onset approx. I would have answered a questionnaire differently. So if I filled in even a very good, non biased questionnaire then and now it would look like two different patients. Is it possible that, for at least...

That's great news @Squeezy! :balloons:

I would say yes. Your body is facing an additional burden, fighting off the infection. It has extra work to do, and feels the consequences, whether it's voluntary work or not. Perhaps, for those at the very extreme end of severity are in the situation where the basic and minimum body function...

This bit I'm not sure about - at least not for everyone at every stage. While I was moderately affected I had good phases and bad phases - perhaps best described as relapsing/remitting. Depending on the timing, I thing it would be easy to say X treatment helped, when I might have been due a...