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Thanks @Keela Too. To be honest, I wonder how much of it is down to deliberate policy. Child services have form for closing their eyes to things they don't want to see and being overly aggressive when it suits. There are good schools, teachers and social workers out there, just as there are...

You would think that wouldn't you? I would have too, until personal experience taught me otherwise. In my extended family, we had a crisis situation develop involving a young teen with a serious, potentially life altering, recognized disease. Due to issues at home, a single parent in mental...

I'd like to know where those recovery stats come from though. it also doesn't mention that some (many?) of those young people who do recover may relapse or develop it again later in life. I don't know if we have any stats on that either.

That sounds nice. That's not the effect it had on me though. Serious muscle weakness problems afterwards. You were also supposed to apply alternating hot and cold ice packs to the spine. I ended lying on the kitchen floor unable to get up. I decided enough was enough.

Well, i tried the Perrin technique with an osteopath, so, if I had a choice between the two, I'll take the toad licking! ....or perhaps the beans (but only the special gold ones).

I don't know if this contributes to the discussion but thats never stopped me before.... @Hutan it sounds like you were away from home during your test. So, and I'm making wild assumptions here about what you did on the day in between the two CPETs, if you did much less than you normally do in...

Well done @JaimeS! Brilliant news! :thumbup:

I think within a crumbling system, the good, curious and genuine doctors are often constrained by the system, while the same excuses and even supports the behaviour of the more self serving doctors who put their careers and self interests above patients every time.

Fundamentally, I think the principles of it is very good. Unfortunately, it is very vulnerable to short term political and financial machinations.

While I believe that most doctor's are generally trying to do their best, there is little doubt in my mind that the politics about and within the NHS are often counter productive to patient care. I have seen happen in companies where certain sections are deliberately managed to fail, so that a...

Sorry @andypants, it's probably me misreading - an especially bad night's sleep.:(

I'm going to throw this out there, please do feel free to disagree as it's a service I've never used. Have you had a look at the Optimum Health Clinic? Not for all the CFS mumbo jumbo, but they do have people who deal with nutrition and I have heard that side isn't bad and they've helped...

As far as I know, most GP's won't do a gastroscopy themselves. They'll refer you to a gastroenterologist at a hospital.

As @Ryan31337 suggested Biolab, I thought I'd throw in my 2 cents worth. I had professional help with digestive problems and they used Biolab. I had to pay, of course. They seemed fine. When it comes to lab testing it is very easy to spend money on the wrong test, or to have the test done and...

Ah, OK. I read this as PEM including physical, cognitive issues and emotional distress, rather than caused by. I was a bit surprised.

I admit to on!y reading the abstract but: Is it normal to experience emotional distress as part of PEM? In the early days I got upset because I just couldn't figure out what the hell was happening, but this was a consequence of PEM not part of it. Nowadays, it naffs me off, but I don't find...

I had IBS long, decades, before I developed ME. Once I developed ME, I researched and learned more about my health and in doing so got my IBS under control. I still have ME though. They may be related and they may overlap for some, but they are not one and the same, in my view.

Yet they like to special status to preview articles and have special rights to reply in journals.

Just an aside - slow release melatonin is the only one that helps me a bit. I can still sometimes find myself wide awake in the middle of the night, though. Everything else makes it worse. Sounds like you were going through a really tough time @oldtimer, hard enough without additional side...

I don't know if this helps.... I have an issue with drugs that supposedly make you sleepy. They wake me up and I also seem very sensitive to hangover and side effects, plus even worse sleep of course. I also had bother with SSRIs and amitryptiline - severe side effects. One thing I noticed...