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:rofl::rofl::rofl::rofl: That actually made me snort with laughter! (I know. I do have a weird sense of humour)

Well worth raiding my piggy bank for another year's excellent work!

Now that letter is a thing of beauty...

Without getting to personal @Sasha but what are you wearing? Would thermal pjs, bedsocks and even a neck snood thingy help? I found I was getting far too hot and then cold etc. So I've got a few tees made of bamboo that I wear as pj tops & seem very comfortable temperature -wise. However...

Excellent letter @Keela Too! That link gives me an error message too @MeSci.

I think you've done brilliantly @Gary Burgess and must be getting a bit tired of all the advice by now. I would just like to say that one of our big advocacy hindrances is that not all medical experts are equal or even neutral in the eyes of patients. Typically, in the past AfME are called...

..or even if you're just over 50. My slim fit 58 year old neighbour was diagnosed with type 2. His wife nagged him into going back for further investigation and then to go back again. Turns out pancreatic cancer will cause that to. However, in the treat 'em and street 'em high volume...

As I see it: Gary is obviously media savvy and has connections. Being newly ill, those connections and contacts are still in place, but being newly ill he is unlikely to grasp the full political, financial, medical and social complexities. Who could? On the other hand, we have the...

I think you're right. We need to bear in mind the target audience. When engaging with the general public and those with no prior knowledge, shoving too much at 'em in one go is as likely to cause them to switch off as to engage them. Hopefully, if you can catch their interest, they might be...

I agree, but there have been times, when a newspaper article or something has come into the public eye, where publicity has actually made matters worse. That has caused previously empathetic friends or family members who mean well to start pushing people towards therapies they don't want, won't...

Calls for CBT to deal with negative thoughts in my view - replace 'em with: In General Practice a number of the patients I see would get better of their own accord without any input from me. I treat them with the same level of contempt - why not. I must learn to understand that people who...

Being denied benefits may also have a knock on effect with state pension payment. People may be denied other insurance payouts (not just PHI). For example, when I first became ill, I had an insurance policy on my mortgage that would have paid the whole thing off - if I could demonstrate that...

Welcome @Gary Burgess! I think you did a great job and love the podcast idea. We do understand the monumental effort involved in what you have done. Thank you! Please don't take any of the criticisms personally, they are not meant that way. ME has such a long history of stigma, abuse and...

i think @Andy said he'd tried ro contact him.

And Absolutely. I actually thought the whole thing went really well and was a great achievement. Well done Gary Burgess and thank you!

I agree totally, @ukxmrv. I'm not defending her stance - I just don't don't want to see her accused of actually saying something she didn't.

Great. A full transcript would be useful. My typing skills aren't great and I don't really like listening to the radio. Don't handle noise very well. If you find that she has outright said that, fair enough. I think we have to be very careful about accusing her about saying something unless...

I agree. To my mind she spend most of her very brief time slot trying not to upset AfME, Holgate and friends. In the process she has done herself no favours with everyone else. I didn't think she was anything like as useful and helpful as she could have been. She needs to openly decide which...

To be fair, she didn't say this. She did say patients were quite rightly angry. Then she went on to say that because of the infighting between different groups (about 27 mins in....) " as a field we are not united and, because of that, quite reasonably, policymakers and funders will look at...

Okay. I tried, but it meanders about a fair bit. Essentially, she did a study and this study was included in the considerations for the NICE guidelines. When her work was included there was an error of significance what was .013 became .13 which makes a big difference. She contacted the...