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Like @Trish says, I too found guided relaxations and visualization very helpful and relaxing. Cognitive issues are one of my most disabling symptoms and I find guided relaxation and meditation helpful to get my mind to rest. Before I became ill I relaxed by swimming, walking, exercising -...

Gives piggy bank experimental shake. Great value for money I think!

I found sitting in the same position with my feet on the floor too much. It is much better and less exhausting if I sit up in bed propped up with pillows. I also have gastropareisis. Position after a meal can be a real issue. I would avoid meditating after a meal. I usually do it about 30...

Well I developed tinnitus aged 5 after having tonsils and adenoids out. My mum used to tell me off because she found me wandering round the house in the middle of the night trying to find what was making the noise. I learned to cope quite quickly. Certainly by the time I was a teen I kinda...

It is. This is precisely the problem with medicine in the UK. You are taking thyroid replacement hormones. Too much can lead to osteoporosis. You have been taking this one & therefore that is the cause. Not considering and ruling out other potential causes.:banghead: Of course the only...

I was finally diagnosed with Hashimoto 's years before developing ME. I had had symptoms for years of the thyroid being overactive and then under. It started in my late teens and my doc just reckoned it was exam pressure :rolleyes:. I was treated with T4 only. My demand for T4 seemed to...

I use cetirizine and have done for years. Bizarrely, it doesn't make me drowsy. Having said that, I am weird - apart from melatonin stuff that is supposed to make a person drowsy tends to keep me awake. I also use a nasal spray and occasionally have to top up with piriton when that just...

May I just take a moment here to recommend my vet? No, I am not joking. My first dog wasn't very well and my vet did routine tests. Although his results were within the normal range my vet reckoned he had subclinical thyroid issues. We altered his diet and put him on supplements to help...

I like the idea @JemPD. I think it should be decided on by the committee though. There is a danger if you invite journalist interest into a thread and someone decides to be disruptive or take their anger out inappropriately it could backfire badly. I think the committee should take a view on...

I occasionally try visualization exercises to take a break. Ones that involve noises I enjoy: Walk on the beach on a windy day with the waves crashing over rocks. Lounging on a river bank by a weir ona sunny day. Waterfalls... The wind rustling fields of long grass A walk in the woods -...

I first experienced tinnitus as a kid, straight after having my tonsils and adenoids removed. My mother used to get cross with me because she often found me roaming the house in the early hours trying to find what was making the noise. It is there all l the time and can become very loud...

I'm not sure anyone is criticizing the author directly @Dr Carrot. I agree she has her experience, which may be different to mine and is fully entitled to express her that. As you say, I think articles like this are useful to bring out the nuances of being chronically ill, but so are the...

I'm really grateful to everyone who wrote & those who assisted them. I'm also grateful to those who wrote, but didn't have their letters accepted. Thank you! :heart:

.....and, unless I am mistaken, it wasn't pacing as we know it, but their own form of adaptive pacing which means always looking to push to do a little more.

I'm sorry @Wonko. So unfair! :hug:

Very true. They have the option to respond but haven't, yet. That's their choice. We can't start kicking people out because they don't join in a particular thread or post. There are a number of members who don't or can't join in. If all members are equal then they have to be treated that way.

I don't disagree. But even if that's true then new pwME might be educated about AfME and to be more discerning about how they spend their membership fees. Censorship, in my view, makes it look like we're the ones afraid of having discussions and debates. Not only are we not afraid to have a...

I frankly don't know what the motivation is behind AfME and their actions past and present. I was a member when I was newly ill and gave it up as as a bad job. Their membership here is neither here nor there in terms of the discussions we shall have and the arguments we put forward. If they...

This was the bit that I was responding to @Barry. I could have been a bit clearer :) I wouldn't judge a person for wanting to try stuff. I would just urge them to be as informed as possible before potentially putting themselves in harms way and spending what little cash they have. ETA:I...

I can see what you're saying here @Barry. In normal circumstances, for healthy, consenting and fully informed adults, if you want to give something a try that may help and is very unlikely to harm - why not? However, when it comes to healthcare and dealing with people who are vulnerable to...