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I'm just as frustrated. I could really do with some answers - even if as @Squeezy says it's just to give me some protection. On the other hand I really don't need hype. I can't afford to have someone promising a biomarker by next Thursday if that isn't going to happen. There are a lot of...

That is so true. The scary thing is that is what I said to myself as it got harder and harder to do the exercise I used to love. Then it got harder and harder to manage the basic necessities of life. I was in agony. I kept telling myself, no, it's normal as you get older to slow down and...

Isn't it just? I was thinking of chucking in a extra few quid so Dave Tuller could send him a thank you card for all the additional funds he'll raise. :D How much is postage from California to the UK? Anyone?

So she stood in Covent Garden every Saturday for a year talking to people and thinks she may have given some people something to think about. If she had conversations with that many people without any one of them giving her something to think about she must have a very closed mind indeed...

? Remind me?

Did you need a prescription @adambeyoncelowe? I have a feeling you need one in the UK.

No. Sounds fine to me.

Thanks for pointing that out @Kalliope . I just realized the date my credit card statement falls means I could manage a second donation. I think I shall donate again in honour of Sharpe. :thumbup:

Yeah, that anti therapy thing really sticks in my craw.

Well I have taken a leaf out of their book. I let my membership lapse years ago and recently received a letter asking if they could still keep in touch. Given how they respond to posts they don't like I shredded it. AfME are now blocked from personal contact and will remain so until the...

Someone who was a patient of Prof. Pinching (from the South West) said he was very good, but that he seemed to say what was needed /toe the BPS line to some extent in public. This patient is very politically aware and was a patient for quite some time, possibly until he retired.

I think you have described my feelings toward AfME very well @Esther12. Until they at least acknowledge and demonstrate an understanding of the past mistakes and damage caused, then I cannot trust them. All the pretty words in the world and dancing around the issue will not change that. If...

This may be a really stupid comment and if it is please ignore. One thing that really stands out with my HR monitor is that depending on my level of PEM doing the same task on different day gives a very different HR reading. Even if the routine on each day is pretty much identical. PEM...

And now you have..... It all started very simply. A friend lived far away & suggested facebook to keep in touch. Then I connected with another friend and before I knew it I was beimg tormented by it. Always with the encouragement to share more. No thanks. I emailed my friends and...

Even though I've had the aura from the start I didn't always have the vomiting. It seems there are quite a few combinations! Lovely :(!

I agree. Having said that, in my own case, I couldn't do it. At one point I had two different "experts" advising me slightly differently . Honestly, like buses - nothing for ages then two of 'em show up :rolleyes:. The diet recommended by the first one was much, much stricter. The second...

My diet wasn't spectacularly high in sugar and I had IBS for years before getting ME. I ended up being advised to go on a complete sugar free and yeast free diet. It was incredibly difficult. The justification was it would improve my ME. It didn't. It really helped my IBS though. I...

Thinking back @Squeezy, long before ME started my triggers were hormones, light, travelling, and overdoing it. Mind you, I was a very fit & active teen. Yes, the horrors of the "just because" migraine! Do you get the ones that wake you during the night? Fine when you went to sleep,but in...

Yes @JemPD! -Frasier's dog - master of the hard stare. I don't think I should have let my dog watch the Paddington movies. She's perfected it! I hadn't heard of Kristin Neff or Andrew Johnson. Brilliant to learn of new resources :thumbup:.

One day, I really hope it comes soon, that man will regret every syllable in those tweets. I think he's so awful he may end up actually helping our cause.