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I hate to think how much money we have collectively wasted over the years on some of this stuff.

Well, that's an interesting question. It seems that research standards in behavioural/psychological interventions are generally quite poor in terms of risk of bias etc. If it is to be marketed as a therapy for sick people then I would want to see it undergo rigorous trials. Far more rigorous...

I guess the guitar string thing is one of those if you get it you'll know it type of things? I found the font very difficult. I've done a little bit and will go back to it. Might be easier to read on my computer rather than my laptop. Dense font in bold is very hard work.

Wow, @Webdog, that's amazing! :thumbup:

I am sorry for the loss of youy workmate @Barry. I have nothing against anyone seeking support for anything and wouldn't judge them for it. Personally, I don't believe that everyone who is seriously ill wants or needs this positivity stuff. I feel it is damaging to puah people to feel...

This is complicated by most patients being so ill they disappear from society. In turn the media stories creates, sustains the stigma and discrimination and so the less severely affected either try to hide their illness completely or be less open about it.

Yeah. If you started pointing out the issues with this one you'd never stop. With friends like that...

59% :)

Perhaps they'd make supportive coasters @Sly Saint :laugh:

I wonder what, if any, any consequences there might be to refusing consent. I can see vulnerable people being pushed from both sides here. This is chilling stuff.

That's the problem with these attitudes. I was at a Reike event (I knew and liked the person running it). There was a young teenager there who had a really noticeable neuro problem. She had quite strong, constant tremors. She mentioned she had been bullied at school because of it. The event...

When I first became ill, in my search for something to help, I ended up meeting and spending time with cancer survivors. I met some lovely, amazing people. Many of them swore by this kind of thing. It was an essential part of their battle. Of course, the thing they didn't always discuss or...

That's a fantastic achievement @Webdog! Thank you so much for al! your hard work and persistence. Well done! :trophy@:trophy@:trophy@

Thanks for the reminder guys :thumbup:

Perhaps we could withhold their payments until they improve? You know, stop encouraging then with all those secondary benefits!

A relative in his very late 80's had a stroke. He recovered extremely well and on her last home visit the young ish GP (who had demonstrated very poor bedside manner throughout) started lecturing him about diet - there were to be no more cooked breakfasts ever again etc. etc.. He looked at...

not sure about that one. It sounds a little selfish and might feed into the needy, weak, attention seeking ME patient narrative. I do like #trolledME @Indigophoton!

Thanks @ chrisb. Now you mention that I dimly remember a ruckus. Done & dusted, I guess.

Why wouldn't you complain @Sunshine3? You are expressing feelings that most of us have had, and doubtless, will have again. There's nothing wrong in that. In fact it helps to have discussions like this. There are probably many people who will read this thread who feel exactly as you do...

Right now it's David Tullers campaign that needs funding. Should we just focus on that first? Could we start with something like #Tuller4ME or something to make the most of the current short window of opportunity and think of something else for the longer term? With David's permission of course.