Search results

Ah I see he's now saying it was a typo and he does NOT know.... When I first read this I thought it was his way of saying that if harms were caused it was because the therapy was carried out by someone who was not one of their preferred therapists. Just as White has wanted /recommended that...

I have used some products from abine that have been good in the past, but not this one: https://www.abine.com/maskme/features/cards/ I'm sure that others like Adrian will be more knowledgeable though. Unfortunately, unless you use a PO box then the chemist will have your address and contact...

I think it can be. I know some people who developed it after exposure to organophosphates. I believe the Countess of Mar became involved because of this. I'm not sure how to answer the poll. I think ME may, in some cases, be triggered by environmental toxins. I don't necessarily think all...

Very true. Good luck with it @Gary Burgess . Well done for getting this off the ground. Well done to the MEA too @Russell Fleming . :thumbup:

I feel when more sorry for the patients that will be persuaded. Especially, when the penny drops that they've been used to further efforts in trivializing the condition. Assuming they select patients with ME, of course

I suspect this is true. I have met one or two people who reckon an eldery female relative had it. A grandmother or aunt who used lurk in an armchair by a fire and rarely did or said much. They were known to be not very well, but it just wasn't discussed. Of course, in those days there...

That is really lovely, really good. Thanks to everyone involved. :thumbup:

My second donation is done. :thumbup:

Well, I mentioned it to my partner and he just cackled evilly...... He reckons it would be entertaining to hear what pearls of wisdom were dispensed and then watch my face. He says it would be essential for me to rest up properly though, because I argue so much better then. Wants to know if...

Congratulations Gary! :)

Well no, there won't be any definitive bio studies because BPS narrative has hijacked our condition for the last 30 years or so. As Sharpe knows very well. Except of course the Ritux one where the researchers have been rigorous and honest. They stated very clearly this was a non runner. No...

The only explanation I can come up with is he must have gotten confused, while standing in front of a mirror, and been addressing himself.

Once I had somethimg pretty similar said to me. I was told, by a doc who had just met me and seen I had been diagnosed with ME, well some people are just weaker than others, can't handle life's pressures, etc., etc. Don't worry it's not your fault, your brain is just wired that way. There...

There'll be another wave, I reckon. I'm planning a second go but need to wait until closer to the end of the month.

Welll...I daresay he's been called worse!

I also think the stage you're at in terms of ME makes a difference. In the early years I felt I got some benefit from yoga when I was in a good phase. Really bad idea in a bad patch, I found. Now, many more years on, it just completely wipes me out, no matter how careful I am and even if I...

Sounds like enforced treatment. So, presumably, if treatment is not helping or making you worse, but you aren't believed then that's too bad. Where's the redress for patients who are harmed by inappropriate treatments?

Bolding mine. The thing that strikes me about this is it sounds so reasonable for someone who hasn't witnessed how easily things are twisted. In the best interests of the patient and they get to be the final arbiter. Like the don't give them benefits or social care, it's for their own good.

I remember seeing a documentary some years ago. Could have been BBC, might not. It was really good. One case couldn't be on camera as social services were involved, so instead they showed the changing season from her bedroom window when her family were speaking. There was a young, pre-teen...

:thumbup: