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Infection Control Today: Long COVID Shouldn’t Have Taken Us by Surprise Some quick excerpts: "Long COVID’s symptoms seem to match those of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), a condition that millions have suffered from for decades." "Long COVID isn’t an anomaly. In...

Dr. Michael Osterholm: Episode 88: Vaccines, Variants, and Long COVID. 56-minute mark: “This not a new phenomenon. We have previously documented chronic implications for infections like Epstein-Barr virus & others that may cause the same picture and surely has some ties to the work we’ve been...

(also not sure if posted) NYT: "New Research Hints at 4 Factors That May Increase Chances of Long Covid" Paywall work-around: https://archive.fo/fkYXd "That some patients had reactivated Epstein-Barr virus also made sense, Dr. Nath said, because other diseases have reawakened that virus, and...

Moved post If this is already posted, please remove. News Medical: "Study explores individuals’ experiences with long COVID" “The main theme of the responses was the feeling of being out of harmony with society, workplace culture, family life, and personal identity. The participants described...

Washington Post: CDC is asked to release race and gender data on long covid “People suffering from Long covid have been ignored and overlooked for far too long. Collecting and publishing robust, disaggregated demographic data will help us better understand this illness and ensure that we are...

UCSF Magazine: The Long Haul "An all-hands-on-deck research effort gave UCSF scientists early insight into long COVID. It also showed patients that they weren’t in the fight alone." "The sudden scientific interest in viruses due to the pandemic could also shed light on other illnesses...

The long-term neurologic consequences of COVID-19 "Studies have shown similarities of long COVID symptoms with those observed in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS)." "Unfortunately, like long COVID, ME/CFS too is poorly understood and lacks effective disease-modifying...

Forbes: "Even Mild Covid-19 Can Cause Brain Dysfunction And Cognitive Issues" Forbes feature highlighting Dr. Iwasaki (Yale) & Dr. Michelle Monje at Stanford: Quote: “Yes, I think we're only scratching the surface now with the link between viruses and diseases. The EBV/MS connection has been...

(not sure if already posted, mentions ME/CFS researcher Dr. VanElzakker) NBC: ‘Worst Hell You Could Ever Imagine': Study Hopes to Shed Light on Long-Haul COVID" "Dr. Michael VanElzakker is the scientist leading a new study, looking to analyze if the brain can shed some light on what causes...

Vox: "How to spot the signs of long Covid — and what to do next" Some quotes: “Many people who have had Covid and who haven’t recovered are starting to look very much like ME/CFS patients,” says Lucinda Bateman, founder and medical director of the Bateman Horne Center, and an expert in the...

Verywell Health: "What Should We Expect From Long COVID Treatment?" “Doctors need to understand that when we say chronic fatigue, we’re saying our bodies are hurting to simply move and to be alive and to function,” Nichols, who is also the Body Politic vice president, told Verywell. "Many...

Dr. Peter Rowe, x2 "Dr. M’s Women and Children First Podcast #13 – Dr. Peter Rowe, Chronic Fatigue Syndrome and Long Covid" Quick quotes: "The similarity between these patients [Long COVID] & our ME/CFS patients was quite strong. My colleagues in the Netherlands have looked at their first...

"Observations on long COVID through an ME/CFS lens" with Dr. Peter Rowe, hosted by FNIH (Foundation for the NIH) Presented 1/14/22 "I think we've been really mishandling patients and blaming them for their symptoms for far too long and this is just another chapter of that book in medicine" -...

Sharing:

Sharing this note from Zeynep Tufekci, a sociologist/writer/columnist with NYT (480k+ followers on Twitter)

Not sure if already posted, by this Twitter thread is worth reading Thread on the study here, with links to the twitter thread.

Sharing from the Communications Director at AAPD [American Association of People with Disabilities: AAPD] From Jess Davidson on Twitter: Some quotes: "I think just about any post-viral illness patient would tell you that the structure of our current medical system is not designed to catch...

Feature on the brilliant Dr. Ron Davis https://www.thetimes.co.uk/article/b48fe264-72e6-11ec-89e9-22d3d9c31ba2?shareToken=0300a38a426b1cd859f4d8f722938150 "Could this scientist have the answer to long Covid?" The Stanford biochemist Ron Davis’s mission to cure his son’s chronic fatigue...

https://www.macleans.ca/longforms/chronic-exhaustion-derailed-lives-and-no-way-out-this-is-long-covid/ "Chronic exhaustion, derailed lives and no way out. This is long COVID." "But January arrived and McGinn still felt terrible. Some symptoms improved, but many never disappeared, and new...

(not sure if this was already posted) https://www.nzherald.co.nz/nz/long-covid-and-mechronic-fatigue-syndrome-life-with-a-post-viral-illness/ZOEYML2DSQN7QSZZG4BHXM66F4/ NZ Herald: "Long Covid and ME/Chronic Fatigue Syndrome: Life with a post-viral illness" "Many experts believe "Long Covid"...