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Was curious if anyone has New Scientist access: 'We’re starting to understand how viruses trigger chronic conditions' 'Widespread cases of long covid have shone a spotlight on the role viral infections play in previously neglected conditions like chronic fatigue syndrome and fibromyalgia'...

Merged thread LC/ME Discussed on Jon Stewart On yesterday's episode of 'The Problem With Jon Stewart' Podcast. the plight of LC/ME + need from Congress support/funding discussed. Sharing a thread of the highlights from the episode as that's a pretty huge platform. Direct link of the start...

Hey all, Just sharing an outreach opportunity to the newly formed Advanced Research Projects Agency for Health (ARPA-H - https://arpa-h.gov/) that will get off the ground in 2023 in the US. Thus far, it seems that ARPA-H is genuinely interested to hear from the American people (...

...what if people have the capacity to change, just curious?

Respect to all those who were able to pursue boosters. I was one in that ~10-20% range that suffered a vaccine injury from my 2nd Pfizer Dose (reported VAERS). It lowered my baseline substantially (increased PEM, increased orthostatic intolerance). My fiancee and I can hardly believe my...

Axios: "Biden clarifies comments declaring "pandemic over" 'President Biden on Tuesday addressed comments he made during a "60 Minutes" interview this week in which he said "the pandemic is over," per a pool report.' 'Driving the news: Biden acknowledged at a New York City fundraiser that he...

"Many experts contend that long COVID is best defined as a chronic-fatigue-syndrome-like condition that develops after COVID illness, similar to other post-viral syndromes. Other post-COVID complications, like organ damage and post intensive care syndrome, should not be defined as long COVID...

Proal is the Chief Scientific Officer for LCRI.

This vaccine situation has been a disaster all the way around. So many adverse reactions with little help to patients. So much trust dissipated with medical system in general.

FWIW, I have emailed Dr. Whittemore relating to this press appearance and know many in the community have done the same. I hope more will follow suit. Below is a quick template shared by a pwME to help copy/paste/send. Her e-mail is whittemorevr@mail.nih.gov...

"IN HIS OWN WORDS: advocating for ME/CFS. Fulton resident Billy Hanlon is sharing his story to help address unmet needs for chronic fatigue syndrome and Long COVID" https://www.swconnector.com/stories/in-his-own-words-advocating-for-chronic-fatigue,6210 "There are several noticeable gaps for...

Moved post City of Minneapolis, May 12, 2022 City Council Just sharing that Minneapolis, Minnesota highlighted ME & Long COVID on World ME Day on May 12th with a City Resolution with a hearing. The timeframe is from the start - until about 9 minutes.

Thank you @Kalliope. Do you happen to have any time-stamps of ME/CFS before I click into the 30 minute segment? No worries if not.

Just to clarify, "unlike CFS" is not within the quote from Dr. Levine; that's the way the journalist has chosen to say it.

I don't have a Nat Geo subscription, but curious if anything of note in this. https://www.nationalgeographic.com/science/article/two-years-into-the-pandemic-covid-19-still-surprises-experts

Wall Street Journal: "The Invisible Kingdom’ Review: Malady Unknown" "Autoimmune diseases, chronic fatigue syndrome, fibromyalgia, Lyme disease and now long-Covid: These are some of the disorders that don’t have easily identifiable markers. Their symptoms come and go, varying between patients...

VTDigger: "Vermonters with long Covid still face barriers to care" "In the way it limits patients’ energy levels, long Covid is similar to myalgic encephalomyelitis, the condition commonly known as chronic fatigue syndrome. Another frequently misunderstood illness that many doctors believe can...

(please withhold judgment, only just sharing excerpts) Posted on 2/19/22, @mtosterholm [Dr. Michael Osterholm] joined Joe Rogan's podcast to discuss several aspects of COVID-19. One topic discussed was Long COVID & relation to ME/CFS. I will relay some of these quotes. (Rogan's podcast reaches...