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We were intentionally lied to about v's protecting transmission...? And now we're supposed to trust this same system with the v's and the possibility of adverse effects it may cause for those who use them..?

Sharing from Jaime Seltzer, one of the co-authors from =AZVrc768pZMntOq-ToGzYNYxromoAwz-W1g1_oOTinQHza2FEF-T3tFCJ4huAAF2eBnQqkjBAwjKo4Dy0GHDuRAhx5r88e4AZB7a1jbaOEe9uz4yKA1-TmA-2Y9q07JbNOQbYGN_9htvfS7Gifx37ta3iSCrAfMiDub33IsqN4WYLgpnVHGDilq6nFzBRpAb2CU&__tn__=R]-R']#MEAction...

Sharing from a LC advocate, this billboard in Georgia (unsure of what city). Sharing as it sounds like other advocates are going to attempt to re-create the same or something similar in their respective states too, but will monitor. Here's the link from Twitter/X that shows the billboard and...

[if this was already shared, my apologies then] Quickly sharing this recent interview with Prof. Akiko Iwasaki, Sterling Professor of Immunobiology & Creator of the Center for Infection & Immunity (CII) at Yale University, recorded 9/26/23: "Autoimmunity, Reactivated Viruses & How the Vaccine...

TY, @RedFox. Does Nat Geo have gift links or anything like WP, if someone wanted to read?

Anyone have Nat Geo access? "What is POTS? This strange disorder has doubled since the pandemic" "Millions of people now live with the debilitating disorder, which can be triggered by viral illnesses like COVID-19. And many say the recommended treatment—exercise—has backfired'...

I attended the webinar of "The New Wave of COVID: A Conversation with Dr. Ashish Jha" today hosted by USC Anneberg School of Journalism. Jha served as the White House COVID-19 Response Coordinator from 2022-2023. Sharing this response from Jha to a question on Long COVID & RECOVER Initiative...

Totally get what you mean but to be fair now, it's on the medical journal to publish [most likely NJEM, is my hunch..] as NIH released the study to whichever journal is peer reviewing (October will make it month 6 at said journal)

Last note from Dr. Hwang "My lab is focused on continuing our experiments to get additional insights into WASF3 while also trying to translate concurrently these insights into the clinics. I believe it is important to proceed carefully and do the best job possible at each stage, especially...

Also quickly sharing Dr. Hwang’s reply to me today. I asked, “Do you think that Dr. Gibbons and NHLBI will support your pursuit for an exploratory treatment trial in this research?“ Dr. Hwang: “Yes, I am sure that our clinical protocol once it is developed will be supported. I believe the NIH...

Sharing with permission, a message by Dr. Hwang, @B_V. I thought it may be beneficial for visibility for the community to view: "I have received a large volume of emails since the publication of the Washington Post article by Brian Vastag about my research. With a desire to be responsive, I...

Just quickly sharing Dr. Hwang's reply after I forwarded my correspondence to NIH on his research. "Thank you very much for your support, Mr. Hanlon. Will keep doing what I can on my side." And this reply from NIH RECOVER, as I copied them to at least have this research on their radar: "Thank...

(mods, if there's a more applicable spot to share, feel free to move to) https://www.nih.gov/news-events/news-releases/clinical-trial-test-immune-modulation-strategy-hospitalized-covid-19-patients-begins 9/22/23, NIH: "Clinical trial to test immune modulation strategy for hospitalized covid-19...

@B_V From a member on Phoenix Rising forum: “Well - I added lead researcher Paul Hwang to the email and he replied to me already! He thanked me for my support and said that he was certain that Drs. Gibbons and intramural scientific director Dr. Richard Childs would support the planned...

Quickly leaving the template here, if others desire to send to NHLBI Director as well: Message Template: To: NHLBIinfo@nhlbi.nih.gov; gibbonsgh@mail.nih.gov Subject: Please support ME/CFS research conducted by Dr. Paul Hwang Dear Dr. Gary Gibbons, I am writing to you in your capacity as...

Thanks for sharing @Jaybee00. That message inspired me, and I wrote to NHLBI Director too. Hoping others may follow suit as well.

This feature is great, thank you for your efforts on this, @B_V!

Not trying to be nosy @B_V, I just wanted to make sure I didn't miss it! All the best.

[Mods feel free to move most applicable, but sharing as ME/LC advocates in Minnesota secured funding measures passed in state legislation last May through multiple rounds of testimonies & written advocacy, a hopeful pathway to more federal progress] Just sharing that Minnesota Department of...

@Jaybee00 Nath & Walitt were there, who led the NIH ME Intramural Study. Systrom was there too (ME Researcher). You probably already knew that though (is my guess), but sharing if others weren’t privy to.